Tag Archives: God

Day 279

Each one of us are God’s representatives – that’s what I learned today 🙂

It’s 7: 50 PM on day 279 of my journey towards independence and I’ve managed to brush my teeth, go to church – the sermon was entitled The Spirit of Truth and was all about how you can’t walk in God’s light if you’re dishonest – feed myself an egg sandwich for breakfast, publish my Kid of the Week feature, feed myself French fries for lunch, read The Importance of Value by Veronica (@VeronicaSchultz)– a blog post about the fact that you can change your reality just by changing what you say to yourself – and The Big Bad Baby Post by Katy (@birdonthestreet) – a blog post about two two new lives that have recently entered our world 🙂 – tweet about my Clean Water For All Campaign – no luck– feed myself rice and curry for dinner and brush my teeth once more.

I woke up today having made up my mind that I wouldn’t wish my father a happy father’s day because quite frankly I didn’t think he deserved it but after hearing ⁸ Philip said, “Lord, show us the Father and that will be enough for us.” ⁹ Jesus answered: “Don’t you know me, Philip, even after I have been among you such a long time? Anyone who has seen me has seen the Father. How can you say, ‘Show us the Father’? ¹⁰ Don’t you believe that I am in the Father, and that the Father is in me? The words I say to you I do not speak on my own authority. Rather, it is the Father, living in me, who is doing his work. ¹¹ Believe me when I say that I am in the Father and the Father is in me; or at least believe on the evidence of the works themselves.– John 14: 8-11 – I realized that I should be the bigger person and wished him a happy father’s day as soon as I got back from church. Are you a good representative of God?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 246

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Your appreciation of something is directly proportional to how hard you had to work to have/do it – that what I learned today 🙂

It’s 7: 32 PM on day 246 of my journey towards independence and I’ve managed to brush my teeth, feed myself a chicken hotdog for breakfast, tweet about my Clean Water For All Campaign –no luck – feed myself rice and curry for lunch, tweet about my campaign some more –still no luck :(– watch TV and brush my teeth once more.

Today I was struggling, struggling, struggling to hold onto my lunchbox with my right-hand while feeding myself breakfast with the left and in that moment I realized that God actually did me a favour by giving me this disability because most people hold and pick up things without a second thought whereas, every time I do any of those things I feel like I’ve won the Nobel Prize. Do you not appreciate your abilities because you can do everything so easily?

Are we connecting on Twitter? If not, say hi at http://www.twitter.com/nisha360

if you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 245

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You should stop trying to get new people to see the real you and start appreciating those who already do – that’s what I learned today 🙂

It’s 8: 46 PM on day 245 of my journey towards independence and I’ve managed to brush my teeth, feed myself a chicken hotdog for breakfast, tweet and Facebook about my Clean Water For All Campaign –no luck – feed myself rice and curry for lunch, tweet about my campaign some more – wow the power of prayer never ceases to amaze me @bonuschief (Frank) made a donation – thanks God and Frank 🙂 – feed myself an orange for dinner and brush my teeth once more.

Today I was reading In the inner circle, there’s no “weird” by Ellen (see excerpt below) – an American mother who has a son with Cerebral Palsy – and I realized that whenever I met new people I was trying to get them to see the real me but no more if you can accept me in the rapper that I’m in then I’ll welcome you with open arms if not, don’t let the door hit you on the way out. Do you try to get new people to like you or choose to hang out with people who already do?

I have been thinking a lot lately about how people see Max. This is not simply because I want him to fit in, so to speak. I ache for people to look beyond his disabilities and see the charming, funny, smart, complex kid I know. I want them to see Max, all of Max. Not just a child with cerebral palsy.

Then I got a grip: In the special needs community, there is no such thing as weird. For the people at the programs we go to, the teachers at Max’s school, the therapists in his life: quirky is the norm. I may have a ways to go to get the world at large to see the wonderfulness of Max. But in the inner circle of special needs that we inhabit, he is who he is—and people usually adore him for it.

Are we connecting on Twitter? If not, say hi at http://www.twitter.com/nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 242

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There’s more than one way to be of service – that’s what I learned today 🙂

It’s 8: 30 PM on day 242 of my journey towards independence and I’ve managed to brush my teeth, tweet about my Clean Water For All Campaign for a few hours –no luck – feed myself rice and curry for lunch, tweet about my campaign some more – no luck – watch TV, feed myself custard for dinner, brush my teeth once more and continue to tweet about my campaign – still no luck 🙁 –

Today I logged onto my Facebook account with the hopes that I could log off as soon as I was done answering a few messages but as you know life doesn’t always go according to plan Anthie – an Indonesian mother who has a son with Cerebral Palsy – started an impromptu chat with me and as I was advising her on what she should and should not do with her son I felt like God was smiling down on me and decided that I would make myself available to people and families affected by Cerebral Palsy because at the end of the day it’s all about paying it forward. How do you use the circumstances of your life to be of service to others?

Are we connecting on Twitter? If not, say hi at http://www.twitter.com/nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Dat 240

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It’s the okay to complain sometimes – that’s what I learned today.

It’s 8: 11 PM on day 240 of my journey towards independence and I’ve managed to brush my teeth, feed myself a polony and lettuce sandwich for breakfast, tweet about my Clean Water For All Campaign for a few hours – after thirteen LONG days a kind heart by the name of Ellen (@LoveThatMax on Twitter) and Adrian Klein – someoone I don’t even know made donations – thanks to both of you for your contributions you don’t know this but I actually prayed
for a donation 🙂 – feed myself rice and curry for lunch, watch TV, feed myself grapes for dinner, continue reading A Purloined Life – the first of two books in Stella Cameron‘s Charmed and brush my teeth once more.

Today as I sat in front of the laptop trying to breathe through the pain in my hips I remember thinking I’m not going to complain, I’m going to complain, I’m going to complain but after a short while I gave in and thought I hate being in pain most of the time, I hate the fact that my father doesn’t take me anywhere, I hate the fact that my mom thinks I do nothing even though I get up every day and try to make a difference, I hate the fact that people see an invalid when they look at me…I hate cp and just like that my anger was gone. Do you hold things in until you feel like you’re about to blow?

Are we connecting on Twitter? If not, say hi at http://www.twitter.com/nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 230

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The more you praise and celebrate your life, the more there is in life to celebrate. – Oprah Winfrey

It’s 7: 48 PM on day 230 of my journey towards independence and I’ve managed to brush my teeth, feed myself baked beans on toast for breakfast, put the finishing touches on this week’s edition of Kid of the Week and publish it only stopping to feed myself rice and curry for lunch, tweet about my Clean Water For All Campaign – no luck – watch the movie It’s Complicated starting Meryl Streep, Alec Baldwin and Steve Martin – it was about a divorced couple having an extramarital affair after Jack – the ex-husband (played by Alec Baldwin) – gets remarried to a much younger woman – it was refreshing in that the ending was totally unexpected I would recommend it to anyone who likes romantic comedies with a twist –tweet about my campaign some more – still no luck 🙁 – and feed myself grilled chicken for dinner

Today as my mother washing my bloodied pants she said God will bless you and without hesitation I responded I am already blessed and that’s when I realized that the fact that I could see myself as blessed was a blessing in itself. Do you praise the life you have or long for the life you could have had?
Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 212

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Having a meltdown isn’t necessarily a bad thing – that’s what I learned today 🙂

It’s 10: 14 PM on day 212 of my journey towards independence and I’ve managed to brush my teeth, feed myself a banana for breakfast, practise wheeling myself around the dining room for an hour, exercise for an hour, listened to music, tweet about my Clean Water For All Campaign for a few hours – no luck – feed myself rice and curry for lunch, start reading Boundary Lines – the second book in Engaging The Enemy by Nora Roberts – watch TV, feed myself Chapati – an unleavened flatbread – and vegetable curry for dinner tweet and Facebook about my campaign – no donation were made but I did decide to name the well Brannan’s Well hopefully none of my donors will have a problem with it (if you have no idea who Brennan is refer to ‘Day 177’)

Today as I was teaching myself how to get around in my wheelchair I accidently got myself stuck in the doorway leading out of the dining room and no matter how hard I tried I couldn’t push myself forward so I just sat there in tears thinking God I know how me being disabled is beneficial for the world inspirational factor and all but what about me I just want to go from one room to another without assistance from anybody and a few minutes after that something came over me and I just decided that I wasn’t going to be the kind of disabled person was a burden on my family and society. Have you ever made a life-changing decision after having a meltdown?

Day 178

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Your talent is God’s gift to you. What you do with it is your gift back to God. – Leo Buscaglia

It’s 9: 57 PM on day 178 of my journey towards independence and I’ve managed to brush my teeth, feed myself fish fingers and fries for breakfast – my mother didn’t know that I had also given up fish for lent and since I couldn’t make myself anything else I just ate it but that’s okay I know God forgives me and now that my mom and I are on the same page I doubt it will happen again :)– tweet about my Clean Water For All Campaign for a few hours – no luck – feed myself rice and curry for lunch, tweet about my campaign some more – still no luck – feed myself a grilled cheese sandwich for dinner and watch TV.

As you may know I am not one for living in what could’ve been because I believe that when you live in all that could’ve been you miss all that is but today I was really having a hard time with the fact that from the moment I got up in the morning to the time I went to bed at night I needed help with something so just this once I allowed myself to write about my fantasy rather than my reality take a look:

5 Things I would do if I could walk

Bungee jump
Skydive
Abseil
Ride on horseback
Shark cage dive

Day 169

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Experience is what you get when you didn’t get what you wanted. — Randy Pausch (The Last Lecture)

It’s 9: 04 PM on day 169 of my journey towards independence and I’ve managed to brush my teeth, feed myself a banana for breakfast, watch TV while feeding myself a chicken polony sandwich for a snack, tweet about my Clean Water For All Campaign for a few hours – no luck – feed myself rice and curry for lunch, exercise for 5 minutes, tweet about my campaign some more – still no luck – send the priest that we had dinner with about a week ago a link to my campaign – hopefully he won’t tell my parents because my explicitly told me not to ask people in our community for donations but I don’t know what else to do it’s not like I can spend the whole day at the mall asking people for donations or organize a fundraiser all by myself – they would KILL ME –figuratively speaking – if they found out I sent the link to my campaign to a priest with the intention of getting a donation – feed myself rice and butternut for dinner and watch The Oprah Winfrey Show.

I have always had this theory that everything you go through has something to teach you and looking back now I can prove it: cerebral palsy has taught the power of perception – all my life I had wanted to be like everybody else but then I realized that maybe just maybe God made me different so that I could have the freedom to be extraordinary – my tumultuous relationship with my father has taught me to love myself from within – ever since I could remember I had been waiting for my father to look me in the eye and say I’m sorry for treating you differently just because you are different I love you just the way you are and then one day not so long ago I decided to stop waiting for my father to come to his senses and start accepting myself and I won’t lie knowing that you don’t need acceptance from anybody else and living it are two very different things there are some days when I ache to be seen by my father not as a disabled person who needs help all the time but rather as a human being who needs to know that her daddy loves her – and last but not least my philanthropic efforts have taught me perseverance –before I started my Clean Water For All Campaign I had tried to raise $1 000 for UNICEF I must have asked all the companies in South Africa all of whom sent me long but polite rejection letters saying thanks but no thanks and as I look back on it today I realize that the reason I didn’t reach my goal last time was because I gave up too easily something as you can see I have not done this time around. Have you learned more from an experience than you have from actually getting what you wanted? 🙂

Day 150

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Seek not the favour of the multitude; it is seldom got by honest and lawful means. But seek the testimony of few; and number not voices, but weigh them. – Immanuel Kant

It’s 9: 48 PM on day 150 of my journey towards independence and I’ve managed to brush my teeth, feed myself a toasted-cheese sandwich for breakfast while watching TV, tweet about my Clean Water For All Campaign for a few hours – no luck today – feed myself rice and curry for lunch, exercise for 30 minutes, feed myself pizza for dinner, update my Facebook friends about my campaign and asked one of them for a donation – it occurred to me that I was putting too much emphasis on the Twitter users and not enough on the Facebook users.

Today as I was lying on bed tweeting, updating my Facebook status and doing everything that needed to be done I remembered something our old reverend once said in one of his sermons one who is popular with everyone is not popular with God and as I remembered that I thought you know what I do not care if people walk in the opposite direction or change the subject for fear that I might ask for a donation because I know that God is proud of me. Do you measure your success by the extent of your popularity? 🙂