Tag Archives: Cerebral Palsy

Day 2698: Contractures and Me

Be grateful no matter what – that’s my message to the world.

It’s 11 : 52 AM on day 2698 of my journey towards independence and I managed to pray, read Ecclesiastes 7:9    and promote my 50 New Feet Campaign benefiting MiracleFeet – raised  $7 201 only $5 299 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks so much to everyone who has helped out so far).

 

Yesterday I found out I have Contractures (my tendons are getting shorter from lack of use) not Osteoporosis I’m glad I don’t have Osteoporosis but having Contractures means I have to go and see my Orthopaedic surgeon  in a few days to discuss possible surgery. Yay (not) I shouldn’t complain I’m grateful that my parents can afford to get me surgery if I need it.

Day 2695: Come What May I Choose Happiness

Come what may– that’s my new approach to life.

It’s 12 : 21 PM on day 2695 of my journey towards independence and I managed to pray, read    and promote my 50 New Feet Campaign benefiting MiracleFeet – raised  $6 926 only $5 574 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks so much to everyone who has helped out so far).

 

Yesterday I spent an entire afternoon in the radiology unit of a local hospital  getting my toe x-rayed (my sister noticed the night before that my big toe on my left foot was misshaped) the good news is it’s doesn’t have an obvious fracture nor does it appear to be dislocated but my toe might be contracted (which means I’ll need tendon-release surgery ) my sister also said she heard the doctor say I have Osteoporosis but I heard him say i need to read the report to see if a piece of the bone hasn’t broken off because of Osteoporosis whatever the report says it won’t change who I am I’m still determined to live and not merely exist I choose happiness today and always.

Day 2619: Life is Like a Cerebral Palsy Foot Spasm

Life is like a Cerebral Palsy foot spasm you just have to breathe through it – that’s what I have realized.

 

It’s 2 : 18 PM on day 2619 of my journey towards independence and I managed to pray,  read John 14:2-4 and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $4 606 only $7 894  more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far).

 

Yesterday morning as I was still lying on my bed one foot just started to spasm I could literally feel the blood vessels at the bottom of feet constricting all I could think through my excruciating pain was breathe, breathe, breathe and after what felt like an eternity and many deep breaths my pain was gone I will never ever tell my parents or doctors what happened yesterday because they’ll put me on a hundred different medications for something that happens once in a blue moon I prefer just to breathe through it the pain I go through reminds me of my aliveness and how much I actually want to be alive . Life is much like a Cerebral Palsy foot spasm you just have to breathe through it and know pain doesn’t last forever.

Day 2612: Dagger through the Heart a Billion Times

However you feel it’s ok – that’s the lesson that keeps coming back to me.

 

It’s 10 : 48 AM on day 2612 of my journey towards independence and I managed to pray,  read 2 Thessalonians 3:16 and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $4 488 only $8 012 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far).

 

This morning as I looked at a picture of a family with a new born baby be happy for them I commanded myself and I genuinely was but even as I type this my right hand is on what will probably never be my womb I feel so empty and it hurts so bad few people in this life will ever know what it’s like to be stared in the face every day by that which you may never have it’s a dagger through the heart being twisted a billion times, taken out and being put back in only you have a smile on your face because you are genuinely happy for the new family and wish them nothing but the very best in life.

Day 2592: Ellen Meet Nisha – A Humanitarian on Wheels #NishaOnEllen”

If at first you don’t succeed try again – that’s my message to the world.

 

It’s 12 :  43 PM on day 2592 of my journey towards independence and I managed to pray,  read 2 Peter 1:16  and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $4 337 only $8 163 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far) .

 

Yesterday I made another attempt to get myself on The Ellen Show to share my story, raise awareness about my 50 New Feet campaign and to teach the world that different is cool. Watch “Ellen Meet Nisha – A Humanitarian on Wheels #NishaOnEllen” below:

Day 2585: What Happened? Curiosity and An Opportunity

May we all be as honest as children– that’s my hope for the world.

 

It’s 11: 15  AM on day 2585 of my journey towards independence and I managed to pray,  read  Daniel 7:13-14 and promote my 50 New Feet Campaign benefiting MiracleFeet – A HUGE thanks to Shajan uncle and Lissy aunty who donated $50 which brings the total raised to  $4 337 only $8 163 more to raise by June 17, 2018 to help 50 kids with clubfoot.

 

Recently I was somewhere and this little boy came up to me and asked what happened? (referring to me being on a wheelchair) I almost burst out laughing I loved the child’s honesty and the ease with which he asked the question my mom told me to ignore him I ignored her and replied I was born this way it’s cool to be different to which he said oh and walked away (I didn’t explain my medical condition because I thought he was a little too young to understand but it was important that I use that moment to teach him that there’s beauty in diversity).   

Day 2581: A Symbol of Possibility

I sit as a symbol of what’s possible for differently-abled people– that’s what I’ve realized.

 

It’s 12: 10  PM on day 2581 of my journey towards independence and I managed to pray,  read  Romans 14:17-19 and promote my 50 New Feet Campaign benefiting MiracleFeet – A HUGE thanks to East London Malayalee Elma who donated $72 and uncle Jose Mammen who donated $108 which brings the total raised to which brings the total raised to $4 012 only $8 488 more to raise by June 17, 2018 to help 50 kids with clubfoot.

 

Yesterday I realized that because I’ve flipped the script on what it means to be differently-abled I sit as a symbol of what’s possible for differently-abled people.

Day 2579: World Cerebral Palsy Day and Making Lemonade

Cerebral Palsy is a medical condition not my definition – that’s what I want the world to know.

 

It’s 1: 02 PM on day 2579 of my journey towards independence and I managed to pray,  have breakfast, read 2 Thessalonians 1:11-12  and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $3 831 only $8 669 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far) .

 

Today is World Cerebral Palsy Day – a day to raise awareness about Cerebral Palsy and to celebrate those living with it  and their families – life with CP is different in that I have challenges with movement but I am intelligent and I have feelings (Cerebral Palsy affects different people differently but for me it’s mostly a mobility impairment). Happy World Cerebral Palsy Day to all those living with it and their families I humbly ask that you please take your lemons and make lemonade the world is dying of thirst.


 

Day 2568: Decide What Defines You

If you don’t want to be defined by your difference of ability then don’t define yourself by your difference of ability – that’s my message to differently-abled people.

 

It’s 12: 14 PM on day 2568 of my journey towards independence and I managed to pray,  have breakfast, read 2 Corinthians 12:9-10,  and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $3 556 only $9 844 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far) .

 

A while ago I realized people who define themselves by their difference of ability will be defined by the world by their difference of ability I hardly ever mention the fact that I have Cerebral Palsy not because I’m ashamed of it but because in most situations it’s irrelevant (what does me fundraising for kids with clubfoot have to do with the fact that I have Cerebral Palsy?) naturally my wheelchair is visible in my videos I don’t try to hide it but I make no mention of it because Cerebral Palsy is my condition not my definition.

Day 2564: Cerebral Palsy – My Blessing In Disguise

Cerebral Palsy just might be my greatest advantage– that’s what I’ve realized.

 

It’s 12: 36  PM on day 2564 of my journey towards independence and I managed to pray,  have breakfast, read James 4:7  and promote my 50 New Feet Campaign benefiting MiracleFeet – Yesterday  Anonymous donated $25 (thanks so much Anon) which brings the total raised to $3 556 only $9 8 944 more to raise by June 17, 2018 to help 50 kids with clubfoot .

 

Today I was searching the internet for physical things I could do to help raise money for 50 New Feet then I had an epiphany because of my challenges wherever I decide to do its impact will be magnified (Cerebral Palsy is totally my blessing in disguise).