Tag Archives: Differently-abled

Day 2690: Children and Me

They are different ways of getting everything I want – that’s what I’ve realized

 

It’s 12 : 11 PM on day 2690 of my journey towards independence and I managed to pray, read Ephesians 3:16   and promote my 50 New Feet Campaign benefiting MiracleFeet – raised  $6 926 only $5 574 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks so much to everyone who has helped out so far).

 

This morning as I looked at a picture of my niece (cousin’s daughter) and I, I  realized that I could still love children and be a part of children’s lives without ever having children or adopting them (I don’t know if that will ever be enough for me but it could be).

Day 2430: No Skydiving For Me Ever

Be flexible in your method but stay committed to your purpose  – that’s what I keep realizing.

 

It’s 11 : 35 AM on day 2430 of my journey towards independence and I managed to pray,  have breakfast, read Proverbs 31: 10 and learn a new word – Definitions for sophistry
1. a subtle, tricky, superficially plausible, but generally fallacious method of reasoning.
2. a false argument; sophism.

 

Today my Orthopaedic Surgeon’s office called back answering the question I asked them about whether it would be safe for me to skydive and sadly the answer is no, under no circumstances needless to say I’m super-bummed about it but my goal in life is to make a difference and change perceptions about the differently-abled while having fun I can do that without jumping out of a plane I can do that by writing books, travelling, telling my story everywhere….I can do that just by being myself.

Day 2360: An Open Letter to Moms of Differently-Abled Kids

When doors don’t open that’s life telling you that you should build your own – that’s my message to the world.

 

It’s 12  :  00 PM on day 2360 of my journey towards independence and I managed to pray, have breakfast, read Titus 2:11, work on a very special future blog post (can’t say much yet but it will be awesome)  and learn a new word –Sartorial [sar·to·ri·al] adj. Of or relating to tailoring, clothes, or style of dress. “Sartorial taste; “Sartorial elegance.”

 

Recently I wrote an open letter to moms of differently-abled kids and I’ve been trying to get websites with that target market to publish it but nobody seems keen so I’m just going to publish it myself. Read An Open Letter To Moms of Differently-Abled Kids below:

 

An Open Letter to Moms of Differently-Abled Kids

Mom and me

Dear mom-of-an-extra-special-child,

 

My name is Nisha Varghese (you may not know I even exist but I’ve seen you around). I’ve always wanted to introduce myself but I never knew what to say that wouldn’t sound awkward or weird so I’m writing you this letter.

 

I see you with your child and I so admire how you just let your child be – you don’t try to make your child act any particular way in order to “fit in” because you know it would be unfair of you to ask that of your child. I apologize for the people who are cruel out of genuine ignorance please know it’s got nothing to do with you or your child and everything to do with them. I know that it’s not easy being a mom to a child with extra needs (I hate the term “special needs”) and I also know there are days you mourn the person your child could have been and the family you could have been I know this because I see it in my mother’s eyes sometimes (it’s okay mom I know you still love me).

 

You are not alone there are families on every corner of this Earth fighting the good fight and celebrating every inchstone because we know how hard-won those are. Thanks for all you are and all you do because of you and my mother people like your child and I have a fighting chance at this life. You’re an AMAZING mother.       

 

Yours sincerely,

Nisha Varghese

Day 2282: Differently-abled by association?

When one member of a family is differently-abled the whole family is differently-abled by association– that’s what I’ve realized.

 

It’s 11: 02 AM on day 2282 of my journey towards independence and I managed to pray and work on my  25 Smiles Campaign    –raised $9 261.04 only  $3 238.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

A while ago I realized that when one member of a family is differently-abled the whole family is differently-abled by association because I’m in a wheelchair when my family is with me they’re limited in the places they can go and the things they can do my head knows it’s not my fault because I didn’t ask to have Cerebral Palsy but my heart often feels guilty about it because I know that they didn’t ask to have a family member with Cerebral Palsy either.

Day 2075: Changing the narrative about differently-abled people

Sometimes if you want the narrative to change you have to change the narrative – that’s what I’ve realized.

 

It’s 12 : 48 PM on day 2075 of my journey towards independence and I managed to pray, read Mathew 25: 25-34, have breakfast, learn one new thing – The five toes on a raccoon’s front paws are extremely dexterous, functioning essentially as five little fingers which allow it to grasp and manipulate food it finds in the wild as well as a variety of other objects, including doorknobs, jars, and latches.– and work on my  25 Smiles Campaign   – A chechi who I think would prefer to remain anonymous donated $25 (thanks so much chechi 🙂 ) which brings the total raised to $5 774 only $476 more to raise before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far 🙂).

 

Yesterday I recorded a message to the media because I wanted to do my part to change the story being told about differently-abled people. Watch “My message to the media about the differently-abled” below: