Tag Archives: Family

Day 2630: A New Edition

34 “A new command I give you: Love one another. As I have loved you, so you must love one another. 35 By this everyone will know that you are my disciples, if you love one another.”

– John 13:34-35

 

It’s 4 : 14 PM on day 2630 of my journey towards independence and I managed to pray,  read Isaiah 12:4 and spent time with family – this weekend is reserved for family work and the world can wait.

 

Yesterday in a beautiful ceremony we welcomed into the family Mrs. Shwetha Varghese, my cousin’s wife, I’m just so very happy I have a new person to love and to be loved by I have a feeling  my new sister and I are going to get along famously.

Day 2629: Cousin of the Groom

Family is everything  – that’s what I know

It’s 10 :00 AM on day 2629  and I’m at my cousin’s wedding [this post is scheduled because nothing matters more to me than my family]

I’m at my cousin’s wedding I’m not a humanitarian or an ability activist I’m just one of many cousins wishing my cousin and his wife happiness, health and prosperity.

Day 2567: On this day 23 Years Ago…….

“For there is no friend like a sister in calm or stormy weather; To cheer one on the tedious way, to fetch one if one goes astray, to lift one if one totters down, to strengthen whilst one stands.” – Christina Rossetti

It’s 2: 37 PM on day 2567 of my journey towards independence and I managed to pray,  have breakfast, read Habakkuk 2:3, go to church – Thanks to Reverend Howarth for allowing me to spread the word about 50 New Feet for MiracleFeet in the Vincent Methodist church – have breakfast with my family  and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $3 556 only $9 844 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far) .

 

On this day 23 years ago my mommy gave birth to my baby sister I was too young to know it but it was the best day ever my sister is the friend that everybody needs and the sister that every sister deserves brutally honest with you for your own good and always there for you (thinking about it makes me want to cry she left for med school 5 years ago but still makes every effort to make sure we know she hasn’t forgotten us she has called every day twice a day from the first day she was in university. Of all the things I am proud to be I’m proudest to be your sister you are everything this world should be I so admire your courage of conviction and like I told you most days I’m so glad you were born. Happy Birthday Neethu love you lots and lots♥

Day 2520: On This Day 17 Years Ago

Treasure your family– that’s my message to the world.

 

It’s 9 : 21 AM on day 2520 of my journey towards independence and I managed to pray, read Romans 10: 9-10, have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – Deepuchachen and Reenachechi donated $250 (thanks so much chachen and chechi) which brings the total raised to $2 853  only $9 647 more to raise  by June 17, 2018 to help 50 kids with clubfoot.

 

On this day 17 years go my mommy gave birth to a baby boy who we named Kevin and our lives have never been the same he’s such a joy and light in all our lives –  no matter what I’m going through when he walk in the room, ruffles my hair and start irritating me (like only he can LOL) I know everything’s not so bad. Happy Birthday Kevin you are so so special to us all.

mekev

neethukev

momdadkev

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Day 2505: 3 Years Gone But Never Forgotten

The meaning of love is not to possess – that’s what I’m learning.

 

It’s 12 : 09 PM on day 2505 of my journey towards independence and I managed to pray, read Isaiah 25:7-8,   have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $2 230 only $10 270 more to raise  by June 17, 2018 to help 50 kids with clubfoot .

 

On this day three years ago my ammachi (grandmother) passed away and took a piece of my heart with her I’m glad she’s no longer suffering but I wish every day that she could have seen me in the newspaper, on the radio, on the zipline, on the paraglider and even on national TV she was so determined that I learn to walk I wish she could see that I am more than okay even though God didn’t grant her request. I miss you every day ammachi but I’m okay and forever will be okay thank you so much for all your prayers they were answered just not in the way you hoped.

gran

Day 2442: My Secret Heartbreak

The feelings you’re brave enough to feel will never devour you– that’s what I have realized.

 

It’s 11: 36 AM on day 2442 of my journey towards independence and I managed to pray, read Romans 5: 5,   have breakfast and learn a new word – Definitions for ultracrepidarian 1.
noting or pertaining to a person who criticizes, judges, or gives advice outside the area of his or her expertise: The play provides a classic, simplistic portrayal of an ultracrepidarian mother-in-law. 2. an ultracrepidarian person.

 

Recently I found myself having to admit to myself that I feel the need to do all these crazy things (ziplining, paragliding, etc) because I probably will never do the one thing I would love to do which is become a mother someday I have always pictured a happy life with an imperfect life partner and a bunch of little ones which is medically possible for me (I think) but even if I was able to find a special person who could see past my body and into my soul I want the best for any kids I may have I want to run after them and tumble in the grass, I want to throw them up in the air and know that my reflexes will be quick enough to catch them…I want for any kids I may have a better mother than I know I can ever be so although it breaks my heart even if things worked out in such a way that I could have kids I’m 75% sure I would choose not to.

Day 2290: Family Time 2016

“Presence is more than just being there. When you take time out, be all there, with your family, friends & quiet time. It’s more than presence.” – Catherine Constantinides

 

It’s 3: 58 PM on day 2290 of my journey towards independence and I managed to pray,   have breakfast, go shopping with family – finally bought Christmas presents for everyone (we do family gifts so each family within our family gets 1 gift from each of the other families), have lunch with family  and work on my  25 Smiles Campaign    – yesterday Joshua, Jonathan and Jeremiah   donated $25 and Stan Faryna donated $25 (thanks SO MUCH to to all of them) which brings the total  raised to $9 311.04 only  $3 138.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ) (Note: My fundraising page has been revamped and because it takes time to move the info from the old platform to the new the total raised looks less than it actually is.

 

Today was a day spent with family shopping with family, eating with family, playing with family…. It was nice and I seldom thought about all the stuff I needed to get done it was nice from now onwards I’m just going to be wherever I am life’s more enjoyable that way.

Day 2282: Differently-abled by association?

When one member of a family is differently-abled the whole family is differently-abled by association– that’s what I’ve realized.

 

It’s 11: 02 AM on day 2282 of my journey towards independence and I managed to pray and work on my  25 Smiles Campaign    –raised $9 261.04 only  $3 238.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

A while ago I realized that when one member of a family is differently-abled the whole family is differently-abled by association because I’m in a wheelchair when my family is with me they’re limited in the places they can go and the things they can do my head knows it’s not my fault because I didn’t ask to have Cerebral Palsy but my heart often feels guilty about it because I know that they didn’t ask to have a family member with Cerebral Palsy either.

Day 2253: Memories

Memories are weird that come flooding back unannounced – that’s what I keep realizing.

 

it’s 11: 12  AM on day 2253 of my journey towards independence and I managed to pray, have breakfast,  read  Psalm 23:6 and work on my  25 Smiles Campaign    –raised $9 011.04 only  $3 488.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

 

Today I was listening to this song titled “Angel” and suddenly all these memories of my paternal grandmother came rushing back I know she lived a full life I’m just sad she isn’t here (physically) to see all that I have done and have become and all that I will do and will become.

Day 2208: Family and the End of the School Term

“Family is not an important thing. It’s everything.” – Michael J. Fox

 

It’s 10 : 18  AM on day 2208 of my journey towards independence and I managed to have breakfast, pray, read 1 John 4:18-19, and work on my  25 Smiles Campaign    –raised $7 675 only  $4 825 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Today is the end of the third school term here in South Africa and since my parents are both teachers and my brother’s still in high school end of term means that the house is going to be full and noisy but I wouldn’t have it any other way I love my family.