Tag Archives: Cerebral Palsy

Day 2581: A Symbol of Possibility

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I sit as a symbol of what’s possible for differently-abled people– that’s what I’ve realized.

 

It’s 12: 10  PM on day 2581 of my journey towards independence and I managed to pray,  read  Romans 14:17-19 and promote my 50 New Feet Campaign benefiting MiracleFeet – A HUGE thanks to East London Malayalee Elma who donated $72 and uncle Jose Mammen who donated $108 which brings the total raised to which brings the total raised to $4 012 only $8 488 more to raise by June 17, 2018 to help 50 kids with clubfoot.

 

Yesterday I realized that because I’ve flipped the script on what it means to be differently-abled I sit as a symbol of what’s possible for differently-abled people.

Day 2579: World Cerebral Palsy Day and Making Lemonade

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Cerebral Palsy is a medical condition not my definition – that’s what I want the world to know.

 

It’s 1: 02 PM on day 2579 of my journey towards independence and I managed to pray,  have breakfast, read 2 Thessalonians 1:11-12  and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $3 831 only $8 669 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far) .

 

Today is World Cerebral Palsy Day – a day to raise awareness about Cerebral Palsy and to celebrate those living with it  and their families – life with CP is different in that I have challenges with movement but I am intelligent and I have feelings (Cerebral Palsy affects different people differently but for me it’s mostly a mobility impairment). Happy World Cerebral Palsy Day to all those living with it and their families I humbly ask that you please take your lemons and make lemonade the world is dying of thirst.

 

Day 2568: Decide What Defines You

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If you don’t want to be defined by your difference of ability then don’t define yourself by your difference of ability – that’s my message to differently-abled people.

 

It’s 12: 14 PM on day 2568 of my journey towards independence and I managed to pray,  have breakfast, read 2 Corinthians 12:9-10,  and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $3 556 only $9 844 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far) .

 

A while ago I realized people who define themselves by their difference of ability will be defined by the world by their difference of ability I hardly ever mention the fact that I have Cerebral Palsy not because I’m ashamed of it but because in most situations it’s irrelevant (what does me fundraising for kids with clubfoot have to do with the fact that I have Cerebral Palsy?) naturally my wheelchair is visible in my videos I don’t try to hide it but I make no mention of it because Cerebral Palsy is my condition not my definition.

Day 2564: Cerebral Palsy – My Blessing In Disguise

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Cerebral Palsy just might be my greatest advantage– that’s what I’ve realized.

 

It’s 12: 36  PM on day 2564 of my journey towards independence and I managed to pray,  have breakfast, read James 4:7  and promote my 50 New Feet Campaign benefiting MiracleFeet – Yesterday  Anonymous donated $25 (thanks so much Anon) which brings the total raised to $3 556 only $9 8 944 more to raise by June 17, 2018 to help 50 kids with clubfoot .

 

Today I was searching the internet for physical things I could do to help raise money for 50 New Feet then I had an epiphany because of my challenges wherever I decide to do its impact will be magnified (Cerebral Palsy is totally my blessing in disguise).

Day 2557: The Obligation to Get Up and Never Give Up

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Sometimes the classy thing to do is to stay in bed but as long as you’re still breathing it’s your obligation to get up and keep trying – that’s my message to the world.

 

It’s 12: 41  PM on day 2557 of my journey towards independence and I managed to pray,  have breakfast, read Jude 1:21  and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $3 452 only $9 048 more to raise by June 17, 2018 to help 50 kids with clubfoot .

 

This morning I felt like staying in bed forever and a day (sometimes I wake up extremely tired I don’t know if it’s a Cerebral Palsy thing, a human thing or a combination of both) no matter what I’m feeling I choose to get up every morning and keep trying because with the gift of every day comes the obligation to get up and make something of it.

Day 2543: Jealous Me

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Dear God help me not to be jealous– that’s the prayer I’ve added recently

 

It’s 12 : 11 PM on day 2543 of my journey towards independence and I managed to pray, read Genesis 12:2-3, have breakfast  and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $3 290 only $9 210 more to raise by June 17, 2018 to help 50 kids with clubfoot .

 

 

This morning I heard that someone I know my age may be getting married and I tried so hard to be happy for him (I really did) I was trying so hard to squash down the green-eyed monster inside of me but the more I pushed down the more it seemed to come up I told my mom to share any happy news with me and I said I wouldn’t get jealous I guess I overestimated myself but I’ll keep praying that I become the non-jealous version of myself someday (when I was younger I never really noticed any differences between me and my peers because I did most of the things they did but now with them getting married and starting families of their own  the differences between them and I are glaringly obvious – I don’t think I’m even jealous that they’re getting married and starting families I’m just jealous that I may never which sucks because I love kids and if things were different I know I would have made a very loving mother).

Day 2540: Some Days I just Want To Be Like You

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The not-so good days makes you appreciate the great days – that’s what I keep realizing

 

It’s 1 : 03 PM on day 2540 of my journey towards independence and I managed to pray, read Revelation 1:7, have breakfast  and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $3 230 only $9 270 more to raise by June 17, 2018 to help 50 kids with clubfoot .

 

 

Today I wake up and all was well until out of the blue I had tummy troubles which can be humiliating when you can’t get to the bathroom fast enough (at least I now know it’s impossible to die from humiliation) the people in my life are so nice they try to make me feel better about it which only adds to my humiliation I know that by giving me Cerebral Palsy God wanted to show people  that He can work through anyone but being the tool in that plan is at times most heartbreaking some days I just want be like you who can feel the grass underneath your feet when you step outside,  you who has a choice whether to use the elevator or the stairs,   you who doesn’t have a designated parking spot in every public place,  you who can enter and leave a place without being noticed…. some days I just want to be like you and I feel so guilty because I know how blessed I truly am to be me.

Day 2534: Always Have A Backup Plan

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The key to avoid being crushed by life’s disappointments is to always have a backup plan – that’s what I’ve realized.

 

It’s 11 : 56 AM on day 2534 of my journey towards independence and I managed to pray, read , have breakfast, read James 2: 17 and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $3 125 only $9 375 more to raise by June 17, 2018 to help 50 kids with clubfoot .

 

Today I realized that the key to avoid being crushed by life’s disappointments is to always have a backup plan (it’s great to have a goal but as my father always says to me don’t put all your eggs in one basket )

Day 2529: The World Is But A Mirror

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The world simply mirrors back to you how you see yourself– that’s what I’ve realized.

 

It’s 11 : 26  AM on day 2529 of my journey towards independence and I managed to pray, read 1 Corinthians 13:12,  have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet –Yesterday Anonymous  donated $250 (thanks so much Anon) which brings the total raised to $3 125 only $9 375 more to raise  by June 17, 2018 to help 50 kids with clubfoot.

 

This morning I was thinking about my attitude of years gone by I had a giant chip on my shoulder because I thought the whole world pitied me but now I realize that what I saw in others was a reflection of how I saw myself because the truth is the world didn’t pity me; I pitied me I pitied my fragile body and the words that didn’t come out fluently but the moment I stopped seeing myself as somehow broken and less than and the moment I stopped making Cerebral Palsy the centre of my universe I saw something different in most people’s eyes I saw love and sometimes even admiration (though I still don’t get what there is to admire I’m just me doing what I do that hardly deserves a medal) now I hardly mention that I have Cerebral Palsy because it has no bearing on most of the things I do in life. I will always have Cerebral Palsy but I am determined that Cerebral Palsy will NEVER EVER have me!

Day 2527: Warning: Exploiters Will Not Be Tolerated

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Recognize when you’re being manipulated and call people on their bluff – that’s my message to myself.

 

It’s 12 : 23  PM on day 2527 of my journey towards independence and I managed to pray, read Psalm 147: 3,  have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $2 875 only $9 625 more to raise  by June 17, 2018 to help 50 kids with clubfoot.

 

Today I felt like I was in a situation where somebody was trying to manipulate me but unlike before I didn’t beg or plead with her instead I called her bluff and that stopped her in her tracks (people know that I’m in need of their physical help and some of them use it to their advantage I will be kind to them nonetheless but gone are the days where my physical needs will be exploited – I deserve the best in life because I try my best to be good and do good I won’t accept anything but the best treatment from all people in my life).