Tag Archives: Cerebral Palsy

Day 2740: Believe the Best about People but Also Beware the Opportunists

Believe the best about people but also when people show you who they are believe them– that’s my message to the world.

 

It’s 11 :  46 AM on day 2740 of my journey towards independence and I managed to pray, read Proverbs 11:30-31  and promote my 50 New Feet Campaign benefiting MiracleFeet – A HUGE thanks to Anonymous who donated $100 which brings the total raised to  $12 659 only $6 091 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018

 

Yesterday someone was telling me that her cousin was misusing the social grant she was receiving for her children so I told her to tell her cousin that what she is doing is wrong and I went on to say I am eligible for a disability grant but I chose not to apply for it because my parents can afford to take care of me and also because there are people who need the grant more than I do to which she said you would be getting more than the child grant, maybe R1000, you could use it to pay the person taking care of you (in other words, her) I was gobsmacked I could not believe she managed to twist a normal conversation into a way for her to get a bigger pay cheque I also couldn’t believe she was willing to use my (I hate this word but I’ll use it because it’s contextually appropriate) disability to make a better life for herself sometimes I worry how people will treat me when my parents are no longer around.

Day 2736: Some Get Wedding Pictures I Get Hospital Pictures

hand

[Picture taken: 23 Feb 2018]

Sometimes the things we say lightly are the truest things – that’s what I’ve realized.

 

It’s 12 :  24 PM on day 2736 of my journey towards independence and I managed to pray, read 2 Samuel 22:4 and promote my 50 New Feet Campaign benefiting MiracleFeet – raised  $12 559 only $6 191 more to raise by June 17, 2018 to help 75 kids with clubfoot (thanks so much to everyone who has helped out so far).

 

This morning I was thinking about something I said to my mother while I was in hospital I said some people my age get wedding pictures I get hospital pictures I meant to lighten the mood with something that in reality breaks my heart my mother was visibly heartbroken I saw it on her face and heard it in the cracks in her voice I now regret the joke that wasn’t actually a joke because now my mom really realizes that I understand and ache for the things I may never have I thought she would forget my words but a few days later when she thought I was sleeping she told my dad what I said (I suppose married people have to tell each other things but I feel embarrassed that my dad  knows that I know and think about marriage, sex and the happily-ever-after-life I think before my joke my parents just assumed that because I am different issues of marriage and children were not in my train of thought but actually sometimes  I think about Saturday mornings where little feet would tip-toe into the bedroom I share with my significant other to have with pillow fights with us and then I snap out of it every time a little heartbroken after which I get back to trying to make the world a better place for all the world’s children… so beautiful yet so heart-breaking),

Day 2729: Wound Check Day

Have no expectation of any situation and you’ll never be disappointed – that’s my message to the world.

It’s 12 : 11  PM on day 2729 of my journey towards independence and I managed to pray,  read 2 Chronicles 7:14 and promote my 50 New Feet Campaign benefiting MiracleFeet – A HUGE thanks to  Stan Faryna, author of Francesco Augustine Bernadone  who donated $50  which brings the total raised to  $8 906 only $3 594 more to raise by June 17, 2018 to help 50 kids with clubfoot.

 

This afternoon I return to my orthopaedic surgeon’s office to have my wounds changed he will either get rid of my bandages completely or simply change them either way I promise myself I won’t get disappointed he knows best and whatever happens will be for the best (I’m alive and healthy everything else is a bonus).

 

Day 2727: Why I Believe God Put Me In A Wheelchair

“It does not matter how small the contribution, make it anyway, it makes a difference. Don’t ask yourself what the world needs, ask yourself what makes you come alive. Then go and do that. Because what the world needs is people who come alive. “  – Catherine Constantinides

 

It’s 12 : 44  PM on day 2727 of my journey towards independence and I managed to pray, read ,  have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet –   A HUGE to  Shahrina who donated $250 and Anon who donated $100  which brings the total raised to  $8 556 only $3 644 more to raise by June 17, 2018 to help 50 kids with clubfoot.

 

Today I watched a video of a young woman rock climbing with only one hand which reminded me that I feel most alive when I’m doing the seemingly impossible and so as soon as I’m fully recovered I’m going to push the Hot Air Ballooning idea and also look into other adventure sports (God put me in a wheelchair but I don’t believe He wants me to bound to it I think He put me in a wheelchair for me to transcend it and in so doing show the world the possibility of humanity (genius plan if you think about it)

Day 2698: Contractures and Me

Be grateful no matter what – that’s my message to the world.

It’s 11 : 52 AM on day 2698 of my journey towards independence and I managed to pray, read Ecclesiastes 7:9    and promote my 50 New Feet Campaign benefiting MiracleFeet – raised  $7 201 only $5 299 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks so much to everyone who has helped out so far).

 

Yesterday I found out I have Contractures (my tendons are getting shorter from lack of use) not Osteoporosis I’m glad I don’t have Osteoporosis but having Contractures means I have to go and see my Orthopaedic surgeon  in a few days to discuss possible surgery. Yay (not) I shouldn’t complain I’m grateful that my parents can afford to get me surgery if I need it.

Day 2695: Come What May I Choose Happiness

Come what may– that’s my new approach to life.

It’s 12 : 21 PM on day 2695 of my journey towards independence and I managed to pray, read    and promote my 50 New Feet Campaign benefiting MiracleFeet – raised  $6 926 only $5 574 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks so much to everyone who has helped out so far).

 

Yesterday I spent an entire afternoon in the radiology unit of a local hospital  getting my toe x-rayed (my sister noticed the night before that my big toe on my left foot was misshaped) the good news is it’s doesn’t have an obvious fracture nor does it appear to be dislocated but my toe might be contracted (which means I’ll need tendon-release surgery ) my sister also said she heard the doctor say I have Osteoporosis but I heard him say i need to read the report to see if a piece of the bone hasn’t broken off because of Osteoporosis whatever the report says it won’t change who I am I’m still determined to live and not merely exist I choose happiness today and always.

Day 2619: Life is Like a Cerebral Palsy Foot Spasm

Life is like a Cerebral Palsy foot spasm you just have to breathe through it – that’s what I have realized.

 

It’s 2 : 18 PM on day 2619 of my journey towards independence and I managed to pray,  read John 14:2-4 and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $4 606 only $7 894  more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far).

 

Yesterday morning as I was still lying on my bed one foot just started to spasm I could literally feel the blood vessels at the bottom of feet constricting all I could think through my excruciating pain was breathe, breathe, breathe and after what felt like an eternity and many deep breaths my pain was gone I will never ever tell my parents or doctors what happened yesterday because they’ll put me on a hundred different medications for something that happens once in a blue moon I prefer just to breathe through it the pain I go through reminds me of my aliveness and how much I actually want to be alive . Life is much like a Cerebral Palsy foot spasm you just have to breathe through it and know pain doesn’t last forever.

Day 2612: Dagger through the Heart a Billion Times

However you feel it’s ok – that’s the lesson that keeps coming back to me.

 

It’s 10 : 48 AM on day 2612 of my journey towards independence and I managed to pray,  read 2 Thessalonians 3:16 and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $4 488 only $8 012 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far).

 

This morning as I looked at a picture of a family with a new born baby be happy for them I commanded myself and I genuinely was but even as I type this my right hand is on what will probably never be my womb I feel so empty and it hurts so bad few people in this life will ever know what it’s like to be stared in the face every day by that which you may never have it’s a dagger through the heart being twisted a billion times, taken out and being put back in only you have a smile on your face because you are genuinely happy for the new family and wish them nothing but the very best in life.

Day 2592: Ellen Meet Nisha – A Humanitarian on Wheels #NishaOnEllen”

If at first you don’t succeed try again – that’s my message to the world.

 

It’s 12 :  43 PM on day 2592 of my journey towards independence and I managed to pray,  read 2 Peter 1:16  and promote my 50 New Feet Campaign benefiting MiracleFeet -raised $4 337 only $8 163 more to raise by June 17, 2018 to help 50 kids with clubfoot (thanks to everyone who has helped out so far) .

 

Yesterday I made another attempt to get myself on The Ellen Show to share my story, raise awareness about my 50 New Feet campaign and to teach the world that different is cool. Watch “Ellen Meet Nisha – A Humanitarian on Wheels #NishaOnEllen” below:

Day 2585: What Happened? Curiosity and An Opportunity

May we all be as honest as children– that’s my hope for the world.

 

It’s 11: 15  AM on day 2585 of my journey towards independence and I managed to pray,  read  Daniel 7:13-14 and promote my 50 New Feet Campaign benefiting MiracleFeet – A HUGE thanks to Shajan uncle and Lissy aunty who donated $50 which brings the total raised to  $4 337 only $8 163 more to raise by June 17, 2018 to help 50 kids with clubfoot.

 

Recently I was somewhere and this little boy came up to me and asked what happened? (referring to me being on a wheelchair) I almost burst out laughing I loved the child’s honesty and the ease with which he asked the question my mom told me to ignore him I ignored her and replied I was born this way it’s cool to be different to which he said oh and walked away (I didn’t explain my medical condition because I thought he was a little too young to understand but it was important that I use that moment to teach him that there’s beauty in diversity).