Tag Archives: Cerebral Palsy

Day 2965: One of Life’s Weeds

Be like a weed between the pavement beautiful because it’s not supposed to grow there – that’s my massage to the world.

 

It’s 12 : 52 PM on day 2965 of my journey towards independence and I managed to  spend time outside, read a Bible verse  and do some work

 

This morning while outside I couldn’t help noticing the weeds between our pavement and I thought how beautiful they were because they weren’t supposed to grow there I feel like one of life’s weeds because by all accounts I wasn’t meant to be anything that I have become and yet somehow by God’s grace and determination something has been made (and is in the making) from this life of mine I feel truly blessed.

Day 2951: Cerebral Palsy Always the Focus

The fact that I have Cerebral Palsy will seldom be separated from that which I do– that’s what I’ve realized

 

It’s 1 : 55 PM on day 2951 of my journey towards independence and I managed to pray, spend time outside – I saw many black birds flying together it was so awesome –   read a Bible verse  and do some work

 

Recently I find myself thinking why can’t the world just mention the work I do without highlighting that I have Cerebral Palsy? I do realize that my story is made more awesome because I am a differently-abled aspiring humanitarian, that is my point of difference, but still when I’m working to help others and the focus is still on my challenges it’s immensely frustrating I hope there will come a day when my work can be the only thing highlighted about my life but until that day comes I’m grateful that being me with Cerebral Palsy has given me platforms to champion the causes I causes I care about.

Day 2946: World Cerebral Palsy Day #WorldCPDay #DifferentIsCOOL

Cerebral Palsy is not the definition of me but it is also a part of me I’m not ashamed of – that’s my message to the world

It’s 12 : 21 PM on day 2946 of my journey towards independence and I managed to pray  read a Bible verse  and do some work

 

Today is World Cerebral Palsy Day, a day that has become a platform for me and others to educate the world about this condition we live with daily. Watch “World Cerebral Palsy Day and Me” below:

 

Day 2857: “Kids Meet A Person With Cerebral Palsy”

“The greatest obstacle to discovery is not ignorance – it is the illusion of knowledge.” – Daniel J. Boorstin

It’s 12 : 18 PM on day 2857 of my journey towards independence and I managed to pray, read a Bible verse and hang out with family

Recently I watched “Kids Meet A Person With Cerebral Palsy” – an informal question and answer session between kids and an adult with Cerebral Palsy – I LOVED how curious and open to learning those kids were if only more adults were like that. Watch ““Kids Meet A Person With Cerebral Palsy” below:

Day 2836: My Cast of Months Gone By and a Reminder of my Spirit Unbreakable

Those born out of the fire don’t wilt in the sun  – my mother’s words to me/Indian Proverb.

 

It’s 12 : 36 PM on day 2836 of my journey towards independence and I managed to pray while sitting outside – there’s something about praying in the middle of the swirling wind that’s truly beautiful – the wind was unrelenting leaves were landing on my head and yet I sat there praying until I was done – m read a Bible verse, have breakfast and listen to music – I think I am going to pause from major fundraising projects for a while I refuse to do the first thing that comes along because I’m currently in-between (every project I do I do because I believe strongly about something and that’s what carries me through the rough days so I’ll never undertake a project because I’m bored or because I feel like I have to do something)

 

Today laying on my bed I remembered the cast being taken off my right arm and me wanting to bring it home so that I would have something to remember the experience by (my dad told the nurse to ignore me and trash it) I was annoyed it at the time but now I realize I didn’t need the cast because I will forever have my scars, a permanent reminder of my spirit unbreakable and my desire to live even while feeling immense pain.

Day 2820: Living in People’s Grace

“When you change the way you think, you can change the way you feel.” – David D. Burns

 

It’s 8 : 59 AM on day 2820 of my journey towards independence and I managed to pray, read a Bible verse and promote my 50 New Feet Campaign benefiting MiracleFeet –  Yesterday a donation of $50 was made which brings the total raised to $14 619 only $4 131 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

 

Recently I’ve changed my perspective from thinking I’m living at other people’s mercy to I’m living in other people’s grace and that shift in thinking has made needing help a lot easier for me. The quality of your life is truly a reflection of the quality of your thoughts.

5 Terms To Never Use On People Who Are Visibly Different

“Words have energy and power with the ability to help, to heal, to hinder, to hurt, to harm, to humiliate, and to humble.” -Yehuda Berg

It’s 12 : 09 PM on day 2810 of my journey towards independence and I managed to pray, read a Bible verse, take a picture for have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – raised $14 469 only $4 281 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

Today I was thinking about words people have used to describe me and those like me and while I know people generally mean no harm I thought I’d list the words that sting me the most so that nobody offends people who are visibly different by accident.

5 Terms To Never Use On People Who Are Visibly Different

  1. Special needs (I have the needs that everybody else I just have extra needs on top of that)
  2. Disabled
  3. Crippled
  4. Handicapped
  5. Differently-abled (most people don’t have a problem with this one but whenever strangers use that word to describe me I hear Nisha can’t walk but as a consolation there’s a lot of other things she can do [I don’t know what those things are but she can do things] the undertone of unintentional pity, even with this political correct term, is something I can’t stand I would prefer that if people had to mention my difference at all they say Nisha has Cerebral Palsy, a neurological condition that affects movement and speech, it’s factual, to the point and has no connotations)

Day 2802: The World’s Pity That Continues To Plague Me

Choose people who choose you– that’s my message to the world.

 

It’s 1 : 23 PM on day 2802 of my journey towards independence and I managed to pray, read a Bible verse, spend time outside – it’s a beautiful day out I’m glad I took time to appreciate it – have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet –  raised  $14 469 only $4 281 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

 

A few weeks ago I emailed someone asking to help him with his project and when he didn’t reply I thought he was busy or didn’t see my email but my dad saw this man recently (for a different reason) and asked him what he needed for his project apparently he saw my email but didn’t respond because he didn’t want me to struggle I was so hurt that even when I want to help people some of them pity me after everything I’ve worked hard to be some people still pity me because of the body I was born into… if people don’t want my humble help then I won’t chase them and not because my ego has been wounded but because I made a decision at the beginning of 2018 to choose people who choose me.

 

Day 2747: Move on with life

Life waits for no person– that’s what I keep realizing

 

It’s 1 : 08 PM on day 2747 of my journey towards independence and I managed to pray,  have breakfast, read Joel 2:12-13  and promote my 50 New Feet Campaign benefiting MiracleFeet –raised  $13 159 only $5 591 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

 

Today will be my first physiotherapy sessions in weeks I know it’s going to be sore because I haven’t exercised in weeks but I’m going to paste a smile on my dial and be a trooper because for me the only alternative to being in pain is being dead and while I know Heaven is awesome God apparently has lots for me still to do here and I’m grateful to still be alive to do it.

Day 2744: The Fearful Me

Be careful what you wish for – that’s my message to the world.

 

It’s 12 : 08 PM on day 2744 of my journey towards independence and I managed to pray,  have breakfast, read Leviticus 20:8 and promote my 50 New Feet Campaign benefiting MiracleFeet –raised  $12 659 only $6 091 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

 

Yesterday as per my request the screw in my toe and the bandages one my arm were removed which I thought would be awesome but I only found out afterwards was that the that the screw was only supposed to be taken out after 6 weeks not 4 (the doctor took it out 2 weeks early because I asked him too if I had known it was 2 weeks too early I wouldn’t have said anything) now I have to be extra careful not to bump toe (every near-miss makes me freak out ) and I’m on another course of antibiotics…  I hate living scared in my own body I’m the one who jumps off cliffs and swings from the treetops this fearful me is not me at all I guess when fear knocks I just have to answer with faith.