Tag Archives: Cerebral Palsy

Day 2540: Some Days I just Want To Be Like You

The not-so good days makes you appreciate the great days – that’s what I keep realizing

 

It’s 1 : 03 PM on day 2540 of my journey towards independence and I managed to pray, read Revelation 1:7, have breakfast  and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $3 230 only $9 270 more to raise by June 17, 2018 to help 50 kids with clubfoot .

 

 

Today I wake up and all was well until out of the blue I had tummy troubles which can be humiliating when you can’t get to the bathroom fast enough (at least I now know it’s impossible to die from humiliation) the people in my life are so nice they try to make me feel better about it which only adds to my humiliation I know that by giving me Cerebral Palsy God wanted to show people  that He can work through anyone but being the tool in that plan is at times most heartbreaking some days I just want be like you who can feel the grass underneath your feet when you step outside,  you who has a choice whether to use the elevator or the stairs,   you who doesn’t have a designated parking spot in every public place,  you who can enter and leave a place without being noticed…. some days I just want to be like you and I feel so guilty because I know how blessed I truly am to be me.

Day 2534: Always Have A Backup Plan

The key to avoid being crushed by life’s disappointments is to always have a backup plan – that’s what I’ve realized.

 

It’s 11 : 56 AM on day 2534 of my journey towards independence and I managed to pray, read , have breakfast, read James 2: 17 and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $3 125 only $9 375 more to raise by June 17, 2018 to help 50 kids with clubfoot .

 

Today I realized that the key to avoid being crushed by life’s disappointments is to always have a backup plan (it’s great to have a goal but as my father always says to me don’t put all your eggs in one basket )

Day 2529: The World Is But A Mirror

The world simply mirrors back to you how you see yourself– that’s what I’ve realized.

 

It’s 11 : 26  AM on day 2529 of my journey towards independence and I managed to pray, read 1 Corinthians 13:12,  have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet –Yesterday Anonymous  donated $250 (thanks so much Anon) which brings the total raised to $3 125 only $9 375 more to raise  by June 17, 2018 to help 50 kids with clubfoot.

 

This morning I was thinking about my attitude of years gone by I had a giant chip on my shoulder because I thought the whole world pitied me but now I realize that what I saw in others was a reflection of how I saw myself because the truth is the world didn’t pity me; I pitied me I pitied my fragile body and the words that didn’t come out fluently but the moment I stopped seeing myself as somehow broken and less than and the moment I stopped making Cerebral Palsy the centre of my universe I saw something different in most people’s eyes I saw love and sometimes even admiration (though I still don’t get what there is to admire I’m just me doing what I do that hardly deserves a medal) now I hardly mention that I have Cerebral Palsy because it has no bearing on most of the things I do in life. I will always have Cerebral Palsy but I am determined that Cerebral Palsy will NEVER EVER have me!

Day 2527: Warning: Exploiters Will Not Be Tolerated

Recognize when you’re being manipulated and call people on their bluff – that’s my message to myself.

 

It’s 12 : 23  PM on day 2527 of my journey towards independence and I managed to pray, read Psalm 147: 3,  have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $2 875 only $9 625 more to raise  by June 17, 2018 to help 50 kids with clubfoot.

 

Today I felt like I was in a situation where somebody was trying to manipulate me but unlike before I didn’t beg or plead with her instead I called her bluff and that stopped her in her tracks (people know that I’m in need of their physical help and some of them use it to their advantage I will be kind to them nonetheless but gone are the days where my physical needs will be exploited – I deserve the best in life because I try my best to be good and do good I won’t accept anything but the best treatment from all people in my life).

Day 2526: Thankful for my Detachable Table

A sense of mastery over tasks builds self-confidence– that’s what I keep realizing

 

It’s 1 : 58 PM on day 2526 of my journey towards independence and I managed to pray, read 2 Thessalonians 2:16-17 ,  have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $2 875 only $9 625 more to raise  by June 17, 2018 to help 50 kids with clubfoot.

 

Yesterday we went to dinner at a family friend’s house and unlike previously because I had a detachable table I was able to feed myself sitting with people my age and my mom was able to eat with the other aunties (before I used to feel so guilty that my mom was stuck feeding me while the other aunties were having conversations and stuff not to mention it was humiliating being in my 20s and having to be fed by my mother in the presence of my peers (at home I am always able to feed myself because our dining table is perfect for me but when we go out it’s slightly more complicated because either we – the kids – wouldn’t be eating at a table or the table would be too high or too low) my detachable table has become my second arm it’s a road to guilt and humiliation free mealtimes no matter where I happen to be I’m so thankful for it.

 

 

Day 2509: My Life – A Miracle

My life is a miracle – that’s what I keep realizing.

 

It’s 12 : 57 PM on day 2509 of my journey towards independence and I managed to pray, read Jeremiah 17:14,  have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $2 555 only $9 945 more to raise  by June 17, 2018 to help 50 kids with clubfoot .

 

Recently I realized what a miracle my life truly is I fall off the toilet yet I’ve jumped off a cliff, I struggle to get my words out yet I speak three languages, I can’t write (by hand) and yet I write every day, I need so much help yet I try to help people and planet every day… simply miraculous if my life is not proof that there is a God in Heaven then I don’t know what is.

 

Day 2501: Be Consciously and Intentionally Kind

Being kind is a decision you’ll never regret – that’s what I want the world to know.

 

It’s 12 : 01 PM on day 2501 of my journey towards independence and I managed to pray, read Philippians 4:6-7   have breakfast, and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $2 125 only $10 375 more to raise  by June 17, 2018 to help 50 kids with clubfoot .

 

Yesterday I decided to consciously and intentionally be kind it was just an incredible feeling going to bed knowing I was as kind as I possibly could be. Be kind you’ll never regret it!

Day 2496: The Love Song That Broke My Heart

“They say a person needs just three things to be truly happy in this world: someone to love, something to do, and something to hope for.” ― Tom Bodett

 

It’s 1 : 05 PM on day 2496 of my journey towards independence and I managed to pray,  have breakfast,read James 1: 12 and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $1 775 only $10 725 more to raise  by June 17, 2018 to help 50 kids with clubfoot .

 

Yesterday I heard “Heartbeat” by Chris Young honestly the song kinda made me sad because I knew that because the world is so vein the chances of someone ever feeling that way about me were slim to none. Listen to “Heartbeat” by Chris Young below:

Day 2491: Me and a Whatsapp Message

It’s the little things that make you love life madly – that’s what I keep realizing.

 

It’s 12 : 32 PM on day 2491 of my journey towards independence and I managed to pray, have breakfast,  read Amos 5: 24   and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $1 750 only $10 750 more to raise  by June 17, 2018 to help 50 kids with clubfoot .

 

 

This morning I typed a Whatsapp message from my smartphone  (because I have Cerebral Palsy I have poor fine motor skills which makes using things like a touchscreen a mammoth task) I feel a bit ridiculous celebrating a Whatsapp message but if you saw how much time and effort it took me to type a six letter word on my smartphone trust me you would be celebrating too.

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Day 2488: Don’t Force It

Everything that’s meant to be will be without you having to force it– that’s my message to the world.

 

It’s 11 : 44 AM on day 2488 of my journey towards independence and I managed to pray, read 2 Acts 18:9-10, have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet –  yesterday Giving Miracles donated $150 (thanks so much to her) which brings the total raised to $1 750 only $10 750 more to raise  by June 17, 2018 to help 50 kids with clubfoot

 

 

Today  I realized that everything that’s meant to be will be in its own time without you having to force it which is not to say I won’t continue to work hard I will I just won’t be in so much angst and trying to force a particular outcome