Tag Archives: Charity

Day 494

When you see that nobody around you is doing what needs to be done you should step up and do it even if it’s not your responsibility – that’s what I learned today 🙂

It’s 6: 51 PM on day 494 of my journey towards independence and I’ve managed to brush my teeth, pray, read Genesis 5 as part of my ongoing quest to learn more about the Bible, prepare and publish my Disability of the Day feature, work, feed myself a hotdog for brunch, work some more, go to physiotherapy and finish working.

This morning I was watching my brother sleep suddenly what happened last night crossed my mind – my parents were having a HUGE fight – I don’t know about what – and for the first time I saw sadness in my brother’s eyes so I said it’s not your fault ( I told him what it was like for me growing up and how I thought they fought because I was disabled) they’re just kidding around (we both knew that wasn’t true they were cursing at each other and breaking picture frames) they’re a little crazy in the head then after a brief pause I continued you’re going to change the world someday he tried to contradict me but I said if I can change the world you can too it was just a heartbreaking situation what annoyed me the most was that I was forced to be the parent while my parents were in the other room venting – and I promised myself that I would instill in him respect for women which is not my responsibility I know but who else is going to do it my parents though they love us are lost in their own world and my sister she’s got her own life story of my life really always cleaning up others people’s mess and making sure everybody’s okay – when I was younger I would make it my job to mend fences between my mom and dad whenever they got into a fight (Note to all my family members who might read this: it is not my intention to make mommy and daddy look bad I am just writing about my experience I can’t help that they were a part of that experience if you can’t understand that you are free to leave this blog and never return). Have you ever had to step into a role that was not your own for the good of someone you love?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 493

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You can do all it as long as you know how to manage your time properly– that’s what I learned today 🙂

It’s 7: 28 PM on day 493 of my journey towards independence and I’ve managed to brush my teeth, pray, read Genesis 4 as part of my ongoing quest to learn more about the bible–I read Genesis 3 yesterday evening before I went to sleep – publish my Disability of the Day feature, feed myself Oats for breakfast, work – I nearly got myself into some hot water but my quick thinking saved me that’s what I LOVE most about this job because I’m dealing with people I never quite know what’s coming next 🙂 – feed myself rice and curry for lunch and work some more.

Last night I went to bed quite late because I still had stuff to do after my first day of work and realized that if I stopped watching TV I would have enough time to do my job, promote my campaign, practice doing things that I need to do to become physically independent, exercise (physical therapy), help my brother with homework (if needed), read the bible and get a decent night’s sleep so you see ladies and gentlemen it’s not the quantity of time that we have that’s the problem the problem is how we choose to spend it think about it even if you only watch two hours of TV a day that adds up to fourteen hours a week that you could put to better use. Do you find that you can do it all because you don’t waste your time doing useless things?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 492

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If you live your life with good intentions it will work for you– that’s what I learned today 🙂

It’s 7: 02 PM on day 492 of my journey towards independence and I’ve managed to brush my teeth, publish my Disability of the Day feature, work (read the next paragraph to understand what work I’m talking about), feed myself rice and curry for lunch and work some more – I LOVE my new job I get to interact with people that I normally wouldn’t interact with.

Yesterday I was chatting to someone on Skype and he asked me if I could manage his Twitter account, I said yes, named my fee and reduced it in return for him getting me more clients – he got me two more – and that ladies and gentleman is how my social media management business started just goes to show God is conspiring for everyone to succeed (Note: If you would like to hire me all you have to do is email me with the following information: what exactly you want me to do, duration – from what time to what time would I have to work Monday-Saturday – your Twitter username and password –if you want me to tweet for you – which option you’ve chosen – my fee ranges from $50 to $100 per month – all payments must be made to my PayPal account at the end of each month I will send you my PayPal email address via email – depending on which option you choose if you choose the ‘Referral’ option you would only have to pay me $50 per month but in addition to the fee you pay me you would have to get me more clients whereas, if you choose the ‘Premium’ option you would have to pay me $100 per month but you wouldn’t have to get me more clients – who your target market is and what you hope to achieve by using Twitter). Is your life working for you?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 491

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To embrace your monster is to take your power back from it – that’s what I learned today 🙂

It’s 8 : 12 PM on day 491 of my journey towards independence and I’ve managed to brush my teeth, feed myself a boiled egg for breakfast, prepare and publish my Disability of the Day feature, drink tea by myself, go to the dentist, read Genesis 2 as part of my ongoing quest to learn more about the Bible, feed myself rice and curry for lunch, tweet with people, watch TV, feed myself noodles and vegetables for dinner and brush my teeth once more.

This morning I logged onto my Twitter account to find that someone was spreading the word about my campaign which I appreciate but right after he mentioned how much money I raised he added from her wheelchair in that moment I realized that no matter what I did in life people would always mention the fact that I was in wheelchair after they mentioned all my accomplishments it’s not a good or bad thing it’s just the way it is and I have chosen to accept it. Are you embracing your monster or running away from it?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 490

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We may all be equal in the eyes of God but we are not equal in the eyes of man – that’s what I learned today 🙁

It’s 7: 20 PM on day 490 of my journey towards independence and I’ve managed to brush my teeth, feed myself a boiled egg for breakfast, practice typing with both hands, read Genesis 1 as part of my ongoing quest to learn more about the Bible, prepare and publish my Disability of the Day feature, tweak this blog – added photos and customized my music player – watch TV, feed myself rice and curry for lunch, watch some more TV – the laptop was in use so I didn’t have a choice but to entertain myself – and exercise for a while.

A few days ago I read Should kids with disabilities be denied transplants? Some doctors think so on Love That Max and I was shocked by the fact that a DOCTOR at The Children’s Hospital of Philadelphia (CHOP) recommended against a kidney transplant for Amelia – a two-year-old who has Wolf-Hirschhorn Syndrome, a rare genetic condition that causes cognitive impairment – because she was “mentally retarded”(read this story as told by Chrissy – Amelia’s mother –) I signed the petition asking The Children”s Hospital of Philadelphia to reconsider their decision and today I’m asking you to do the same because I believe that no doctor or hospital in the world has the right to decide who gets to live and who gets to die. Does your belief that we are all equal match your actions?

Statement from The Children’s Hospital of Philadelphia: CHOP does not have any criteria which exclude patients from being considered for transplant solely on the basis of their cognitive status.

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 489

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There is no question that the bible can’t answer. – my maternal grandma

It’s 7: 29 PM on day 489 of my journey towards independence and I’ve managed to brush my teeth, drink tea by myself, go to church – the sermon was titled Being right is not enough and was basically about how we shouldn’t exercise our freedoms and engage in things that give us pleasure if it means leading our fellow man astray– feed myself Batura and chicken curry for breakfast, prepare and publish my Disability of the Day feature, prepare and publish my Kid of the Week feature, feed myself pizza for lunch, hang out with my cousin’s kids, go visit some people and brush my teeth once more.

Today while at church I remembered the discussion I had with my grandma – my mother’s mother – about Christianity in which she asked me if I read the bible and I explained to her that I expressed my Christianity by helping others suffice to say she was disappointed and said something along the lines of your actions are admirable but you should read the bible there is no question the bible cannot answer so from today onwards in honour of my grandma I am going to read the bible– our church (the one that we go to here in South Africa) lists verses we should read every day of the week at the back of their notices I’ll read those first. Are you under the misconception that being Christian consists solely of going to church, reading the bible and praying?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 488

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How you define what you want can change your whole life– that’s what I learned today 🙂

It’s 6: 05 PM on day 488 of my journey towards independence and I’ve managed to brush my teeth, feed myself an egg sandwich for breakfast, prepare and publish my Disability of the Day feature, listen to music, sign the petition Children’s Hospital of Philadelphia: Allow the kidney transplant Amelia needs to survive – the hospital refuses to perform a kidney transplant on two-year-old Amelia because she’s ‘mentally retarded’ CAN YOU BELIEVE THAT! I urge you to sign the petition (100 000 signatures is the goal so far we’ve got 4 095) (Note: This petition was started by Sunday of Extreme Parenthood who has two kids with autism –) thank you for caring Sunday – listen to some more music, watch TV and continue to listen to music.

As you all know I have accepted the fact that I Cerebral Palsy and moved on with my life although I have felt in the past that my life lacked adventure because of my physical limitations but now that I think about it I realize that all the things I would have done had I been able to walk – bungee-jumping, sky-diving – wouldn’t have given me as much joy as the things I’m doing now do I mean so what I can’t jump off a bridge or a plane I raised enough money – with the help of my friends around the world (thanks guys) – to build a well for a community somewhere in the world that lacks clean water and because of me there are twenty kids who have sandwiches to eat almost every weekend is there a greater adventure than knowing you’ve made a difference in the lives of others. Have you changed your whole life by changing the definition of the things that you want?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 487

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Our minds can protect us without us even knowing it– that’s what I learned today 🙂

It’s 8: 51 PM on day 487 of my journey towards independence and I’ve managed to brush my teeth, prepare and publish my Disability of the Day feature, practice typing with both hands feed myself sausages for breakfast, watch TV, tweet with people – I love talking to people from different walks of life – feed myself rice and curry for lunch, watch some more TV and go to my cousin’s mother-in-law’s memorial service.

Today I awoke to the sounds of my parents yelling at each other – my father was calling my mother bitch and saying that their wedding was nothing more than a ceremony – and while usually I would try to break up the fight by saying something like mom I need some water this time I just said – in my head – Our Father who art in heaven, hallowed be thy name. Thy kingdom come. Thy will be done on earth as it is in heaven. Give us this day our daily bread, and forgive us our trespasses, as we forgive those who trespass against us, and lead us not into temptation, but deliver us from evil. For thine is the kingdom, and the power, and the glory, for ever and ever. Amen. added please don’t let Kevin – my eleven-year-old brother – wake up he doesn’t need to hear this and proceeded to transport myself –in my mind – to the Eiffel Tower in Paris and the Big Ben in London – whenever I’m faced with things that I would rather not hear or see I automatically disconnect my mind from my body so that when it’s over I can go with my life physiatrists and psychologists call it disassociation (Note to all my family members who might read this: it is not my intention to make mommy and daddy look bad I am just writing about my experience I can’t help that they were a part of that experience if you can’t understand that you are free to leave this blog and never return). Have you ever been in a situation where you had to jump out of your body for a while to protect your sanity?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 486

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Monsters live in the dark – that’s what I learned today 🙂

It’s 7: 27 PM on day 486 of my journey towards independence and I’ve managed to brush my teeth, prepare and publish my Disability of the Day feature, practice typing with both hands – I sent out some tweets about water so I killed two birds with one stone 🙂 – feed myself custard for breakfast, exercise for a few minutes, watch TV, tweak this blog, feed myself spaghetti bolognaise for lunch, continue to tweak this blog, watch some more TV, feed myself bread and beef curry for dinner and brush my teeth once more.

Yesterday I went to the dentist to get a root canal thinking I would be in a world of pain during and after the procedure and when I got there it was a bit of an anti-climax – the dentist numbed my gum (that was a bit painful) and after that all I felt was the pressure from her – the dentist – digging around in my tooth (if all goes well I’ll have a permanent filling put in on Tuesday and that will be the end of that) – just goes to show imaginations can scare our us more than any procedure can. Do you often make a big deal out of nothing?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 485

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For every pleasure you enjoy, you must suffer some pain. We had a fabulous vacation, but it’s going to take us years to pay for it. Oh, well, there’s no pleasure without pain. Yesterday I basked in the warm sunshine all afternoon; today I’m badly sunburned. There is no pleasure without pain. – Author unknown

It’s 12: 51 PM on day 485 of my journey towards independence and I’ve managed to brush my teeth, feed myself a boiled egg for breakfast, prepare and publish my Disability of the Day feature, tweak a few things on this blog, practice typing with both hands and watch TV.

As you may know I went to the dentist to get rid of the black spot on my tooth – I fell down a couple of stairs a few years ago and my tooth has been black ever since – before I went to India unfortunately it turned out an abscess had formed and the dentist said I had one of two options either I could have the tooth removed – I decided not to do that no way would I get a false tooth at the age of twenty – or I could get a root canal so today afternoon I am getting a root canal which needless to say doesn’t send tears of joy running down my face but that’s life I guess, we have to take the pleasure with the pain (Note: I apologize in advance if I don’t post for the next two days I might be in pain after the root canal which would make it impossible for me to write anything you would want to read). Are you willing to take the pain along with the pleasure or would you rather take the pleasure and leave the pain?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!