Day 1801: Taylor Swift, Cerebral Palsy and Being Honest

Just by being vulnerable and honest we can change people’s lives – that’s what I realized today.

 

It’s 1 : 11 PM on day 1801  of my journey towards independence and I’ve managed to brush my teeth,  pray, read Mark 6,    publish my Disability of the Day feature,     have breakfast, learn one new thing –  The heartbeat (lub-dub sound) is the produced by the closing of the atrioventricular valves.– and  promote my Educate Generations campaign – Benedict Joson who wrote  Let’s care for the future by investing in global education donated $10 today (thanks so much Benedict your support means a lot to me 🙂 ) which brings my total raised to $4 601 (I love people like Benedict he’s a young guy with his own education projects going and yet he found it in his heart to help me that means more to me than he’ll ever know).

 

This morning I stumbled across Taylor Swift’s performance of “Ronan” – a song she co-wrote dedicated to a little boy named Ronan who sadly died of cancer (apparently Taylor read Ronan’s mom’s blog every night) – after hearing what Taylor said about honesty and writing I have decided to open up a little more (I usually don’t write post that are whiny because I think the world and its people have enough problems already I’m not going to add my problems on top of that but maybe just maybe me sharing my whiny posts may make someone somewhere feel less alone and if it only does that it will be worth it) although I have A LOT to be grateful for living with Cerebral Palsy is hard my muscles are stiff most of the time, food moves slower through the digestive system because I don’t move around much (if I don’t eat right ALL THE TIME I’m constipated for days), sometimes when I talk people don’t understand what I’m trying to say so I have to repeat myself and then there are people who treat me like I’m invisible and like I’ll amount to nothing in life (I swear some people have come to visit and if they even bother acknowledging my presence the first thing they ask me is either what’s good on TV? [I wouldn’t know I literally haven’t watched TV in weeks] or they ask what are you playing on the computer? [admittedly I am on my laptop most of the day but 98% of the time I’m working my butt off])…. It’s just hard sometimes having to live with a condition you didn’t choose I just want everybody with Cerebral Palsy to know that I understand what they’re going through and that they are not alone.

2 thoughts on “Day 1801: Taylor Swift, Cerebral Palsy and Being Honest

  1. Giuliana

    You’re so brave and wise Nisha. I think it’s important to share your challenges (not whiny at all – it’s reality) as well as your achievements. It helps me understand CP better too. I’m all for being authentic otherwise how do we learn in life. For example I really struggled as a newly we’d and every couple I met seemed so happy so I thought I was weird. Meantime they were all pretending. So I decided that I’d be open about my struggles and it has helped those younger than me that I encounter. 🙂 much love to you, you amazing young woman!

  2. Nisha Varghese Post author

    Thanks. Yep if we’re going to share the good parts of our lives might as well paint an honest picture and share the not-so-good parts too 🙂

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