Tag Archives: Struggles

Day 1993: Because it’s hard

Because it’s hard that’s why I have to do everything – that’s what I realized yesterday.

 

It’s 12 : 47 PM on day 1993 of my journey towards independence and I managed to pray, read Hebrews 4,  learn one new thing –Dry ice is frozen carbon dioxide. A block of dry ice has a surface temperature of -109.3 degrees Fahrenheit (-78.5 degrees C). Dry ice also has the very nice feature of sublimation — as it breaks down, it turns directly into carbon dioxide gas rather than a liquid. – go to church, hang with family, have breakfast and work on my 25 Smiles Campaign –  Meg Guegan donated $25  (thanks Meg for your ongoing support it means the world to me 🙂 ) which brings the total raised to  $3 037 only $3 213 more to raise by 10 Jan 2017  (SO SO SO GRATEFUL to everyone who has supported this campaign so far :)  ).

 

Yesterday I went to the CANSA Shavathon (it had ended by the time we go there but that’s besides the point) I made up my mind to go precisely because it was so much effort I figured if people saw me there they would understand that even though they’re struggling and imperfect they can show up and be of service to humanity.

Day 969: Accepting my struggles

You’ve got to accept your struggles knowing that they are preparing you for something greater in life – that’s what I learned today 🙂

It’s  2  : 34 PM on day 969 of my journey towards independence and I’ve managed to brush my teeth, publish my Disability of the Day feature, stretch my hamstrings,  practice sitting up straight to strengthen my core muscles, feed myself baked beans sandwich for breakfast, take off my dirty t-shirt and put on a clean one, practice typing with both hands,  pray and read Numbers 22.

This morning I was having another one of those this-is-so-unfair days sometimes I can’t help but think of the people who smoke, drink and engage in risky behaviours and wake up the next morning feeling absolutely fine meanwhile people like me who don’t smoke, drink or engage in risky behaviours have to struggle every day to do the most basic things it all seems just a little unfair but you know what this is the life I’ve been given and I’m going to do the best I can with it.     Do you accept your struggles knowing that they are preparing you for something greater in life?

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