Tag Archives: Cerebral Palsy

Day 2526: Thankful for my Detachable Table

A sense of mastery over tasks builds self-confidence– that’s what I keep realizing

It’s 1 : 58 PM on day 2526 of my journey towards independence and I managed to pray, read 2 Thessalonians 2:16-17 , have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $2 875 only $9 625 more to raise by June 17, 2018 to help 50 kids with clubfoot.

Yesterday we went to dinner at a family friend’s house and unlike previously because I had a detachable table I was able to feed myself sitting with people my age and my mom was able to eat with the other aunties (before I used to feel so guilty that my mom was stuck feeding me while the other aunties were having conversations and stuff not to mention it was humiliating being in my 20s and having to be fed by my mother in the presence of my peers (at home I am always able to feed myself because our dining table is perfect for me but when we go out it’s slightly more complicated because either we – the kids – wouldn’t be eating at a table or the table would be too high or too low) my detachable table has become my second arm it’s a road to guilt and humiliation free mealtimes no matter where I happen to be I’m so thankful for it.

Day 2509: My Life – A Miracle

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My life is a miracle – that’s what I keep realizing.

It’s 12 : 57 PM on day 2509 of my journey towards independence and I managed to pray, read Jeremiah 17:14, have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $2 555 only $9 945 more to raise by June 17, 2018 to help 50 kids with clubfoot .

Recently I realized what a miracle my life truly is I fall off the toilet yet I’ve jumped off a cliff, I struggle to get my words out yet I speak three languages, I can’t write (by hand) and yet I write every day, I need so much help yet I try to help people and planet every day… simply miraculous if my life is not proof that there is a God in Heaven then I don’t know what is.

Day 2501: Be Consciously and Intentionally Kind

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Being kind is a decision you’ll never regret – that’s what I want the world to know.

It’s 12 : 01 PM on day 2501 of my journey towards independence and I managed to pray, read Philippians 4:6-7 have breakfast, and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $2 125 only $10 375 more to raise by June 17, 2018 to help 50 kids with clubfoot .

Yesterday I decided to consciously and intentionally be kind it was just an incredible feeling going to bed knowing I was as kind as I possibly could be. Be kind you’ll never regret it!

Day 2496: The Love Song That Broke My Heart

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“They say a person needs just three things to be truly happy in this world: someone to love, something to do, and something to hope for.” ― Tom Bodett

It’s 1 : 05 PM on day 2496 of my journey towards independence and I managed to pray, have breakfast,read James 1: 12 and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $1 775 only $10 725 more to raise by June 17, 2018 to help 50 kids with clubfoot .

Yesterday I heard “Heartbeat” by Chris Young honestly the song kinda made me sad because I knew that because the world is so vein the chances of someone ever feeling that way about me were slim to none. Listen to “Heartbeat” by Chris Young below:

Day 2491: Me and a Whatsapp Message

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It’s the little things that make you love life madly – that’s what I keep realizing.

It’s 12 : 32 PM on day 2491 of my journey towards independence and I managed to pray, have breakfast, read Amos 5: 24 and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $1 750 only $10 750 more to raise by June 17, 2018 to help 50 kids with clubfoot .

This morning I typed a Whatsapp message from my smartphone (because I have Cerebral Palsy I have poor fine motor skills which makes using things like a touchscreen a mammoth task) I feel a bit ridiculous celebrating a Whatsapp message but if you saw how much time and effort it took me to type a six letter word on my smartphone trust me you would be celebrating too.

Day 2488: Don’t Force It

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Everything that’s meant to be will be without you having to force it– that’s my message to the world.

It’s 11 : 44 AM on day 2488 of my journey towards independence and I managed to pray, read 2 Acts 18:9-10, have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – yesterday Giving Miracles donated $150 (thanks so much to her) which brings the total raised to $1 750 only $10 750 more to raise by June 17, 2018 to help 50 kids with clubfoot

Today I realized that everything that’s meant to be will be in its own time without you having to force it which is not to say I won’t continue to work hard I will I just won’t be in so much angst and trying to force a particular outcome

Day 2486: Build Relationships

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Build relationships they last longer than things– that’s my message to the world.

It’s 12 : 29 PM on day 2486 of my journey towards independence and I managed to pray, read Galatians 5:13, have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $1 600 only $10 900 more to raise by June 17, 2018 to help 50 kids with clubfoot .

Recently I’ve realized most people acquire things while I find immense joy in building relationships with people from different walks of life I read somewhere that one’s 20’s is about building relationships and networks I’m finding that to be so true.

Day 2485: TIME – The Most Valuable Present?

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T.I.M.E is how love is really spelt – that’s my message to the world.

It’s 11 : 20 AM on day 2485 of my journey towards independence and I managed to pray, read 2 Corinthians 3:17, have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – yesterday Roy uncle and Betty aunty donated $100 (thanks so much to them) which brings the total raised to $1 600 only $10 900 more to raise by June 17, 2018 to help 50 kids with clubfoot

Today I was reminded that T.I.M.E is how love is really spelt we often try to buy people’s affections and attention forgetting that our presence is actually the most valuable present.

Day 2483: The Ridiculous and Not-So-Ridiculous Things I Pray For

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My life is really a tale of two-halves – that’s what I keep being reminded of.

It’s 12 : 27 PM on day 2483 of my journey towards independence and I managed to pray, read Psalm 119:45, have breakfast and promote my 50 New Feet Campaign benefiting MiracleFeet – raised to $1 400 only $11 100 more to raise by June 17, 2018 to help 50 kids with clubfoot .

This morning I was reminded that my life is really a tale of two-halves one minute I’m praying that God helps me find people who will be willing to help me heal kids with clubfoot and the next minute I’m praying (literally praying) to have a pain-free bowel movement (all the doctors in my life have tried to get me on laxatives but I don’t want to be dependent on it forevermore) it almost seems unfair that I’m the one trying so hard to make a difference some days I just want to punch a hole in the wall and cry a thousand tears but I choose to get up every day and try because i know that life is not a chore it’s a gift.

Day 2462: THANK YOU to the Heroes of the Garden Route

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“A hero is someone who has given his or her life to something bigger than oneself.” – Joseph Campbell

It’s 12 : 23 PM on day 2462 of my journey towards independence and I managed to pray, have breakfast, read 1 Chronicles 16:12, go to church, and learn a new word – Definitions for aegis 1.protection; support: under the imperial aegis. 2. sponsorship; auspices: a debate under the aegis of the League of Women Voters. Classical Mythology. the shield or breastplate of Zeus or Athena, bearing at its center the head of the Gorgon.

Recently parts of South Africa have been ravaged by fire and while it has been devastating I’m heartened to see South Africa coming together to support those in need. Thank you to the firefighters who are risking their lives to rescue people and to everyone else helping out in different ways.