Attitude is a little thing that makes a big difference. – Winston Churchill

It’s  4 : 01  PM on day 982 of my journey towards independence and I’ve managed to brush my teeth, stretch my hamstrings,  take off and put on a jacket and t-shirt, practice sitting up straight to strengthen my core muscles,  feed myself All Bran Flakes for breakfast, pray, read Numbers 35, publish my Disability of the Day feature,       practice typing with both hands,   tweet and Facebook about my campaign and feed myself rice and curry for lunch.

Last night I came across the inspiring story of Shane Burcaw  – a twenty-year-old who has a progressive condition called Spinal Muscular Atrophy – what inspires me most about Shane is that he knows how his story is going to end and still chooses to live, love and laugh Watch My Last Days: Meet Shane Burcaw it’s guaranteed to change the way you live your life: