Tag Archives: special needs

Day 929

You can change the world just by being yourself– that’s what I keep learning 🙂

It’s 5  : 14 PM on day 929 of my journey towards independence and I’ve managed to  take off my dirty t-shirt, brush my teeth, try to clean myself in the bathroom,  put a clean t-shirt on, feed myself Chapati and baked beans for breakfast,   pray, read Leviticus 9, go visit people, feed myself baked bean roll for lunch and  publish my Disability of the Day feature.

A couple of weeks ago we hired a new housekeeper for the weekend and today she came in while I was changing, said it was cold and that I was taking too long and proceeded to help me get dressed I had to explain to her that even though it would take me a while to do things I would eventually do them I said I’m not like other people what takes you two minutes to do takes me two hours to do to which she said as if she suddenly realized how fortunate she was like putting on a t-shirt  it’s cool that just being around me makes people more grateful.  Has someone changed your world just by being themselves?

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Day 928

After silence, that which comes nearest to expressing the inexpressible is music. – Aldous Huxley

It’s 1 : 36 PM on day 928 of my journey towards independence and I’ve managed to pray, take off my dirty t-shirt and put a clean t-shirt on, stretch my hamstrings,  brush my teeth, go to church – it was quite funny we rushed to church thinking the service started at 9  when we got there the service was halfway done oh well better late than never LOL 🙂 – read Leviticus 8,  publish my Disability of the Day feature, practice typing with both hands and listen to music.

Today being Good Friday I thought I’d share with you my favourite Christian songs. Listen and enjoy:

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Day 927

You can or you can’t you’re right either way– that’s what I keep learning 🙂

It’s 11 : 49 AM on day 927 of my journey towards independence and I’ve managed to stretch my hamstrings, take off my dirty t-shirt and put a clean t-shirt on,  practice sitting up straight to strengthen my core muscles, try to wheel myself around – the blisters I got from pushing myself around yesterday made it hard for me to push myself around today but I tried my best and will keep on trying tomorrow  – brush my teeth, feed myself All Bran Flakes with Soy Milk for breakfast, pray, read Leviticus 7,  publish my Disability of the Day feature and practice typing with both hands.

Yesterday after I had done everything I had to do I decided to push myself to my bedroom instead of asking our housekeeper to do it, it took 40 minutes and a lot of sweat but eventually I made my way from our dining room to my bedroom now that I’ve seen that I can do it after my blisters have healed I’m going to buy myself a pair of gloves and push myself wherever I need to go.  Can you or can’t you?

I LOVE hearing from you feel free to leave a comment below.

Day 926

It takes so little to lift someone’s spirits – that’s what I learned today 🙂

It’s 12 : 10 PM on day 926 of my journey towards independence and I’ve managed to take off my dirty t-shirt and put a clean t-shirt on, stretch my hamstrings, practice sitting up straight to strengthen my core muscles, try to wheel myself around – pushing myself on a wheelchair is hard because my right hand doesn’t work all that well I know what you’re probably thinking why don’t you just get a motorized wheelchair well because I know I can get around in a manual wheelchair if I just practice hard enough I refuse to use a motorized wheelchair when I know with a lot of hard work I could learn how to get around in a manual wheelchair 🙂 – brush my teeth, feed myself a peanut butter sandwich for breakfast, pray, read Leviticus 6,  publish my Disability of the Day feature and practice typing with both hands.

This morning I was feeling down in the dumps about the state of our world until I opened my inbox to find a Facebook message from this woman I know in real life apparently she saw the article about me on Longevity Magazine and was inspired by my story people in my life, if they think of me at all, think that I sit in a corner and wither away and I don’t go out of my way to correct them if I correct one person I have to correct them all and frankly I don’t have time for that it’s nice that that article has shown at least one person that we are not always what we appeared to be. Has someone ever lifted your spirits without even knowing it?

I LOVE hearing from you feel free to leave a comment below.

Day 925

Education is the only way to eradicate ignorance – that’s what I keep learning.

It’s 1 : 55 PM on day 925 of my journey towards independence and I’ve managed to stretch my hamstrings, try to clean myself in the bathroom, brush my teeth, feed myself an uzhunnu vada–a savory Indian doughnut – and chutney for breakfast, publish my Disability of the Day feature, practice typing with both hands,   pray, read Leviticus 5,  practice sitting up straight to strengthen my core muscles and work.

As you may or may not know March is Cerebral Palsy Awareness Month and in honour of that I’m going to share with you again some facts about Cerebral Palsy. Take a look:

13 Facts about Cerebral Palsy

1. Cerebral palsy (CP) is an umbrella term encompassing a group of non-progressive, non-contagious motor conditions that cause physical disability in human development, chiefly in the various areas of body movement.

2. Cerebral palsy is classified into four broad categories: Spastic, Athetoid (or dyskinetic), Ataxic, and Mixed.

3. Spastic cerebral palsy affects 70 to 80 percent of patients and is characterized by stiff or permanently contracted muscles.

4. Athetoid cerebral palsy affects 10 to 20 percent of patients and is characterized by uncontrolled, slow, writhing movements.

5. Ataxic cerebral palsy is a rare form that affects 5 to 10 percent of patients. This form of cerebral palsy affects the sense of depth and perception and results in poor coordination and difficulty with quick or precise movements.

6. Mixed cerebral palsy occurs when a patient has symptoms of two or more of these forms. Many combinations are possible, but the most common mixed form is a blend of the spastic and athetoid forms.

7. A number of other medical disorders are associated with cerebral palsy including: mental impairment, seizures or epilepsy, growth problems, impaired vision or hearing, and abnormal sensation or perception.

8. Cerebral palsy is caused by damage to the motor control centres of the developing brain and can occur during pregnancy, during childbirth or after birth up to about age three.

9. Brain damage in the first few months or years of life can cause acquired cerebral palsy. Causes of early brain damage can include brain infection (for example, meningitis or viral encephalitis) and head injury (for example, from a motor vehicle accident, a fall, or child abuse).

10. Congenital cerebral palsy is present at birth. Some of the common causes include infections during pregnancy, jaundice in the infant, Rh incompatibility, and severe oxygen shortage in the brain, trauma to the head during labor and delivery, and stroke. 

11. In many cases, cerebral palsy is preventable and may be due to medical negligence. 

12. Low birth-weight babies are 100 times more likely to develop cerebral palsy than normal birth-weight infants are. 

13.There is currently no cure for cerebral palsy, but treatments for cerebral palsy can be used to manage this condition and help a child reach his or her potential. This treatments and therapies include physical therapy, occupational therapy, medicine, surgery, braces, and more.

(Note: The facts above were complied from http://www.cerebralpalsysource.com/cp_quickfacts/index.html and http://en.wikipedia.org/wiki/Cerebral_palsy)

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Day 924

Your birthday is a special time to celebrate the gift of ‘you’ to the world – Unknown

It’s 10 : 37 AM on day 924 of my journey towards independence and I’ve managed to brush my teeth,  pray, read Leviticus 4,  publish my Disability of the Day feature, practice typing with both hands, practice sitting up straight to strengthen my core muscles,  feed myself  Appam and baked beans for breakfast, take off my dirty t-shirt and put a clean t-shirt on and spend time with our neighbor – she’s so sweet she brought me a birthday gift whenever it’s someone’s birthday she comes by with a gift people don’t do that anymore it’s really cute 🙂

Today being my birthday I thought I’d share with you the greatest lessons I’ve learned in my 22 years of life. Take a look:

Greatest Lessons I’ve Learned In My 22 Years Of Life

  1. We are all more alike than we are different
  2. All of us just want to feel heard and understood
  3. What you seek from other people you have to give yourself first
  4. What matters is not how much you have but rather how much you give
  5. Enjoy the simple things in life
  6. Be grateful for all that you have because there are people out there who have less than you
  7. Never ever give up on anything in life because the difference between success and failure is perseverance

I LOVE hearing from you feel free to leave a comment below.

Day 922

A society is defined not only by what it creates, but by what it refuses to destroy –John Sawhill

It’s 3 : 34 PM on day 922 of my journey towards independence and I’ve managed to brush my teeth, feed myself a peanut butter sandwich for breakfast, pray, read Leviticus 2,  publish my Disability of the Day feature and practice typing with both hands.

As you may or may not know today at 8: 30 PM local time people will be turning off their lights for an hour as part of Earth Hour – an annual event that aims to raise awareness about climate change– you may be wondering what is there to do in the dark well there are plenty of things you can do in the dark I’ve come up with a list. Take a look:

5 Things You Can Do During Earth Hour

  1. Play board games with family or friends
  2. Go outside and stare at the stars
  3. Talk to the people who are with you
  4. Think about all the things you have that other people may not have and be grateful
  5. Sleep

I LOVE hearing from you feel free to leave a comment below.

Day 920

Pay no mind to those who pity you no matter who they are– that’s what I learned today.

It’s 3 : 58 PM on day 920 of my journey towards independence and I’ve managed to stretch my hamstrings, take off my dirty t-shirt and put a clean t-shirt on – I almost had an embarrassing moment when a visitor came by while I was dressing myself luckily mom helped me finish getting dressed before the woman came to say hi to me –    brush my teeth,  try to clean myself in the bathroom,    feed myself All Bran Flakes with Soy Milk for breakfast, pray, read Exodus 40, publish my Disability of the Day feature, practice sitting up straight to strengthen my core muscles,  practice typing with both hands and feed rice and curry for lunch.

This morning my sister called we had a brief conversation after which my mom took the phone, walked to the other room and said it’s your sister’s birthday on Monday we should do something she’s sitting alone [all the time] the pity in her voice broke my heart and I told her as much through my tears I expect strangers to pity me because they don’t see all that I do but for my own mother who sees everything I do and how hard I try to pity me was beyond me it’s okay though I’m over it God sees all that I do and He does not pity me. Do you feel pitiful when people pity you?

I LOVE hearing from you feel free to leave a comment below.

Day 919

We say we are all equal but our actions say something else – that’s what I keep learning 🙁

It’s 3 : 14 PM on day 919 of my journey towards independence and I’ve managed to  stretch my hamstrings,  practice sitting up straight to strengthen my core muscles,   brush my teeth,  pray, feed myself a salad sandwich   for breakfast, read Exodus 39, publish my Disability of the Day feature,  practice typing with both hands,    promote my 10 For 22 Campaign -I still need 19 people to reach my goal with 5 days to go till my birthday– and  make sandwiches as part of Virginia’s Sandwich Run with our housekeeper’s help – it feels so good to help people even though they don’t know my name or my face 🙂

Today I read Doctors put lower value on lives of the disabled, study finds – an article on The Telegraph about a study that finds that some doctors put lower value on the lives of the disabled – and I am shocked that some doctors would give Do Not Attempt CPR orders based on their assumptions about the quality of life of “disabled” people I am “disabled” and I happen to think I have a great quality of life to think that should something happen to me a doctor would not even attempt to save me because he/she thinks I have a bad quality of life scares me.      Are your words and actions about equality consistent?

I LOVE hearing from you feel free to leave a comment below.

Day 918

“One last thought regarding presuming competence…   to presume incompetence is to actively do damage.  Let’s all agree not to do harm to our fellow human beings.”  – Ariane Zurcher

It’s 2 : 54 PM on day 918 of my journey towards independence and I’ve managed to  brush my teeth,  try to clean myself in the bathroom – I want to be able to do this properly by my birthday next year I can’t do it to my satisfaction just yet but I’m getting there 🙂 – pray,  feed myself All Bran Flakes with Soy Milk for breakfast, read Exodus 38, publish my Disability of the Day feature,  practice typing with both hands, promote my 10 For 22 Campaign – as of last night three people have donated 10 fruit trees each to reach my goal I need 19 more U.S citizens to do the same before or on March 25th (my birthday)  – practice sitting up straight to strengthen my core muscles,take off my dirty t-shirt and put a clean t-shirt on,  stretch my hamstrings and work.

Yesterday I read “Presume Competence” – What Does That Mean Exactly? – a blog post on Emma’s Hope Book about what it really means to presume that someone who has a disability is competent – which got me thinking what if people presumed I was competent instead of presuming I was incompetent the way things are right now I feel like people have this view that I’m incompetent until proven otherwise I’ve lost count of how many times I’ve had to say something along the lines of no, I don’t play computer games all day I work, try to help people and read. Do you presume “disabled” people are incompetent until they prove otherwise?

I LOVE hearing from you feel free to leave a comment below.