Tag Archives: @bonuschief

Day 245

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You should stop trying to get new people to see the real you and start appreciating those who already do – that’s what I learned today 🙂

It’s 8: 46 PM on day 245 of my journey towards independence and I’ve managed to brush my teeth, feed myself a chicken hotdog for breakfast, tweet and Facebook about my Clean Water For All Campaign –no luck – feed myself rice and curry for lunch, tweet about my campaign some more – wow the power of prayer never ceases to amaze me @bonuschief (Frank) made a donation – thanks God and Frank 🙂 – feed myself an orange for dinner and brush my teeth once more.

Today I was reading In the inner circle, there’s no “weird” by Ellen (see excerpt below) – an American mother who has a son with Cerebral Palsy – and I realized that whenever I met new people I was trying to get them to see the real me but no more if you can accept me in the rapper that I’m in then I’ll welcome you with open arms if not, don’t let the door hit you on the way out. Do you try to get new people to like you or choose to hang out with people who already do?

I have been thinking a lot lately about how people see Max. This is not simply because I want him to fit in, so to speak. I ache for people to look beyond his disabilities and see the charming, funny, smart, complex kid I know. I want them to see Max, all of Max. Not just a child with cerebral palsy.

Then I got a grip: In the special needs community, there is no such thing as weird. For the people at the programs we go to, the teachers at Max’s school, the therapists in his life: quirky is the norm. I may have a ways to go to get the world at large to see the wonderfulness of Max. But in the inner circle of special needs that we inhabit, he is who he is—and people usually adore him for it.

Are we connecting on Twitter? If not, say hi at http://www.twitter.com/nisha360

if you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 189

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My disability has made me a better person – that’s what I learned today 🙂

It’s 8: 34  PM on day 189 of my journey towards independence and I’ve managed to brush my teeth, feed myself Batura – deep fried bread – for breakfast,  watch the movie Life as We Know It staring Katherine Heigl, Josh Duhamel and Josh Lucas with my sister (in South Africa March 21st  is Human Rights’ Day so we are given a public holiday)– it was a heart-warming  story of two people who hated each other coming together to raise a child after the death of their mutual best friends I would recommend it to anyone who likes romantic comedies – feed myself rice and curry for lunch,   tweet about my Clean Water For All Campaign for a few hours – two donations were made today: the first one was a $10 from @bonuschief (Frank) and the second one was a $110 donation from @LegalEagleStar (Tom) of EARLY & BALDWIN SOLICITORS   – thanks guys you make me want to get up in the morning and do this all over again 🙂 –    feed myself Chapati – an unleavened flatbread – filled with butternut and mutton gravy – I made a conscious effort not to ingest any meat because I was on lent and it paid off in spite of my brother who was doing everything in his power to get me to take a bite LOL 🙂 – and watch TV.

Today I was watching an episode of The Oprah Winfrey Show titled Sister Wives it was about a man, his four wives and sixteen children and I caught myself thinking what, how, why … this is wrong and in that moment I decided that I would not do to others what others did to me because I knew what it felt like to be on the receiving end of judgment every time I went out people would stare and make up their minds about me before I had even said a word.  Have your limitations been a blessing rather than a curse?