Tag Archives: Cerebral Palsy

Day 2273: Mistakes – an opportunity to do better?

Mistakes are an opportunity to do better next time – that’s my message to the world.

 

It’s 11: 02 AM on day 2273 of my journey towards independence and I managed to pray    and work on my  25 Smiles Campaign    –raised $9 161.04 only  $3 338.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Yesterday I was working on something and I didn’t save the document needless to say I was bummed to lose eleven pages of work but instead of dwelling on my mistake I choose to start again and if I do say so myself the second version of the document is way better than the first (mistakes teach us things that help us do better next time).

Day 2272: Christmas Appreciation Challenge

“The roots of all goodness lie in the soil of appreciation for goodness.” – Dalai Lama

 

It’s 11: 20 AM on day 2272 of my journey towards independence and I managed to pray,   read   Hosea 6:3 and work on my  25 Smiles Campaign    –raised $9 161.04 only  $3 338.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Last night I challenged my friends to call at least three people who help them or love them with no expectation of gratitude and tell them how much they appreciate them and now I’m challenging all of you to do the same. Tis the season for giving and gratitude so give your love.

Day 2271: Disability360 Campaign

“There is a plan and a purpose, a value to every life, no matter what its location, age, gender or disability.”- Sharron Angle

 

it’s 12: 52 PM on day 2271 of my journey towards independence and I managed to pray,   read 1 Samuel 12:24, work on an article (hopefully to be published),    and work on my  25 Smiles Campaign    –raised $9 161.04 only  $3 338.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Two days ago the South African Broadcasting Corporation  Foundation launched the Disability360 campaign, an initiative aimed at empowering People with Disabilities. Listen to Doug Anderson speaking about Disability360 below:

 

Day 2270: World AIDS Day 2016

“Observe a moment of silence and make a pledge to know your status, NOT stigmatize, discriminate and judge those infected #WorldAIDSDay.” – Criselda Kananda-Dudumashe

 

it’s 12: 02 PM on day 2270 of my journey towards independence and I managed to pray,   read Lamentations 5:19   and work on my  25 Smiles Campaign    –raised $9 161.04 only  $3 338.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Today is World AIDS Day let’s educate ourselves more about the disease and stand in support of those infected and affected by the disease. Thou shall not discriminate against anyone with HIV /AIDS because HIV/AIDS does not discriminate – anyone could have it you, your mother, your father, your siblings or your friends it just takes one ill-informed choice or one unfortunate accident. Stop the stigma. Know your status.

Day 2269: Feeling Caged – The Reason For My Drive To Uplift?

“If you change the way you look at things, the things you look at change.” – Wayne Dyer

 

it’s 11: 07 AM on day 2269 of my journey towards independence and I managed to pray,   read Revelation 14:7  and work on my  25 Smiles Campaign    –raised $9 161.04 only  $3 338.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Yesterday I had an epiphany maybe I wasn’t meant to be free maybe this feel of being caged inside my body is what drives me to pry the door open for other people (my instinct and desire is to chase freedom and to be free but maybe if I didn’t feel caged I wouldn’t be so driven to make sure others had every opportunity to succeed).

Day 2268: Because God Has Something Better in Mind

When you don’t get what you want believe God has something better in mind – that’s my message to the world.

 

it’s 11: 13 AM on day 2268 of my journey towards independence and I managed to pray,   read Colossians 3:17 and work on my  25 Smiles Campaign    –raised $9 161.04 only  $3 338.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Yesterday I realized that something I really want to do was likely not going to happen I cried about it for a long while (I hardly ever cry unless I’m in physical pain or discomfort) but now I’m choosing to believe if I don’t get what I want it’s because God has something better in mind.

Day 2267: “Over and Over Again” by Nathan Sykes

From the way you smile to the way you look
You capture me unlike no other
From the first hello, yeah, that’s all it took
And suddenly we had each other

And I won’t leave you
Always be true
One plus one, two for life
Over and over again

So, don’t ever think I need more
I’ve got the one to live for
No one else will do, and I’m telling you
Just put your heart in my hands
Promise it won’t get broken
We’ll never forget this moment
Yeah, we’ll stay brand-new ’cause I’ll love you
Over and over again
Over and over again

 

Nathan Sykes, “Over and Over Again”

 

it’s 12: 10 PM on day 2267 of my journey towards independence and I managed to pray,   read 1 Chronicles 16:34    and work on my  25 Smiles Campaign    –raised $9 161.04 only  $3 338.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Recently I heard “Over and Over Again” by Nathan Sykes it’s such a sweet song I totally love it. Listen to  “Over and Over Again” by Nathan Sykes below:

 

Day 2266: Words and the Power We Give Them to Hurt

The words of others don’t have the power to hurt you unless you believe them– that’s what I’d like everyone to know.

 

it’s 12: 06 PM on day 2266 of my journey towards independence and I managed to pray,   read Psalm 100: 4, go to church – today the sermon was about Joseph and how sometimes the right thing to do is not always the right thing to do –     and work on my  25 Smiles Campaign    –raised $9 161.04 only  $3 338.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Today somebody said something that taught me that the words of others don’t have the power to hurt me unless I believe them (know yourself and choose not to believe the hurtful things people say about you).

Day 2265: Giving Time

Your time is the best gift you can give anyone – that’s what I was reminded of.

 

it’s 11: 30 AM on day 2265 of my journey towards independence and I managed to pray, have breakfast,  read Isaiah 12:4    and work on my  25 Smiles Campaign    –raised $9 161.04 only  $3 338.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Today while I was calling people I was reminded that your time is the best gift you can give anyone because everybody just wants to know that they matter.

Day 2264: The Multifaceted Challenges of Cerebral Palsy

Every condition has more effects then people are aware of – that’s what I’d like the world to know.

 

it’s 1: 12 PM on day 2264 of my journey towards independence and I managed to pray, have breakfast,  read Psalm 7:17   and work on my  25 Smiles Campaign    –raised $9 161.04 only  $3 338.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Today I would like to share the different challenges of a life with Cerebral Palsy people see the wheelchair and assume that my challenges are just physical when in reality that’s just the tip of the iceberg. Take a look:

 

The Multifaceted Challenges of Cerebral Palsy

 

  • Physical: Because I am less mobile than the average person my hamstrings are tight, my muscles are stiff, I have poor circulation to my lower extremities and it takes longer for food to pass through my digestive system
  • Social: Growing up as a child and even in my teenage years I did not have many friends (outside my family) I always felt like people got stuck on the shell that is my body which made me instinctively just shut down thankfully things are better know because of the work I do people see that there’s more to me then my body which also makes me wonder if I didn’t do what I do and if I wasn’t who I am would most of these people still be around?
  • Mental: I think I have more than a little health anxiety I’m always worried something’s wrong with me physically (and in my situation honestly I don’t even blame me – I bump my foot and the next think I know I’m on antibiotics for an infection)
  • Emotional: Over the years people have said some of the most hurtful things about me and to me and as a result I’m a very guarded human I never let anyone see me cry out of emotional pain I won’t give them that satisfaction (I can take the cruelty of others I’m a big girl but seeing my mother cry over the ignorant things people say about me just destroys  me my mother’s tears are like drops of acid on my heart)  
  • Accessibility: Before we go anywhere we have to research whether the transportation to the place and the accommodation at the place is wheelchair-accessible and sometimes even after we do the proper research and make the proper arrangements we get there and things are not as we thought they would be (it’s the most annoying thing known to man)
  • Attitudes of the general population: Most people are presumed competent until they prove otherwise, whereas the differently-abled people are presumed incompetent until they prove otherwise (I’ve used being underestimated to my advantage – if people decide to feel sorry for me they will pay dearly for it ( and the beneficiary of their pity will always be a good cause LOL 🙂 )