Tag Archives: special needs

Day 1307: Have you given yourself what you wish you could get from other people?

Sometimes you have to give yourself what you wish you could get from other people– that’s what I keep realizing.

It’s 2 : 40 PM on day 1307 of my journey towards independence and I’ve managed to pray, brush my teeth, continue reading Divergent by Veronica Roth, go shopping with family, feed myself a chicken sandwich and fries for brunch, chat to my granny in india on Skype publish my Disability of the Day feature and promote my Eradicate AIDS campaign – Anonymous donated £10 yesterday (thank you Anonymous I know who you are and you know who you are) which brings my total raised to $582.85.

Yesterday something happened – I won’t mention what because my intention in writing this is not to make anybody look bad – that made feel like someone was ashamed to be seen with me it hurt but because I had already accepted myself what that person did didn’t leave me shattered. Have you given yourself what you wish you could get from other people?

Day 1306: Give people a chance

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Give people a chance they might surprise you – that’s what I keep learning.

It’s 12 : 00 PM on day 1306 of my journey towards independence and I’ve managed to pray, brush my teeth, feed myself All Bran Flakes for breakfast, read Job 40, publish my Disability of the Day feature, promote my Eradicate AIDS campaign – still no luck since Monday I know my voice matters and that I do have some influence I just feel like my voice isn’t loud enough to make people listen and act which sucks because there are people dying of AIDS as I sit here and type this – practice sitting up straight to strengthen my core muscles, stretch my hamstrings and hang out with my sister.

Yesterday a couple came to visit us and the aunty was talking to me like I was no different from anybody else (usually people who don’t know me are awkward around me) later she told me she has read this blog and seen my campaigns I think reading this blog is helping people in my real life see me and not my wheelchair which is funny because I hid this blog from them for about three years for fear that they wouldn’t understand. Have you ever opened up to people and been pleasantly surprised by their response?

Day 1305: Giving and the Ten Percent Rule

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If you don’t give more than what is required you’ll never have more than you need – that’s what I believe.

It’s 10 : 06 AM on day 1305 of my journey towards independence and I’ve managed to pray, brush my teeth, go back to bed – I woke up too early- read Job 39, publish my Disability of the Day feature, feed myself an egg sandwich for breakfast, promote my Eradicate AIDS campaign – still no donations since Monday – and practice sitting up straight to strengthen my core muscles

A couple of days ago my dad and I were talking about money and he said when you make money you can give ten percent [of it away] at which point I asked him what’s wrong if I give eleven percent I believe if you don’t give more than what is required you’ll never have more than you need. Do you have more than you need because you give more than what is required?

Day 1304: Ziauddin Yousafzai: My daughter, Malala

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Everybody needs at least one person who believes in them – that’s what I keep realizing.

It’s 12 : 17 PM on day 1304 of my journey towards independence and I’ve managed to pray, brush my teeth, read Job 38, publish my Disability of the Day feature, promote my Eradicate AIDS campaign – still no donations since Monday – feed myself All Bran Flakes for breakfast, watch Christiane Amanpour’s full interview with Malala – I love this Malala interview you get to see the funny and passionate side of Malala – practice sitting up straight to strengthen my core muscles, stretch my hamstrings and hang out with my sister.

Last night I watched Ziauddin Yousafzai: My daughter, Malala – a TED Talk by Ziauddin Yousafzai, father of Malala Yousafzai, about patriarchy and what not to do when raising children – watching this talk I didn’t ask myself how Malala grew up to be who she is today I asked myself with a father like that how could she not grow up to be who she is today. Watch Ziauddin Yousafzai: My daughter, Malala below:

Day 1301: Do you speak even when you have nothing good to say?

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If you have nothing good to say it’s best not to say anything at all – that’s what I realized this morning.

It’s 12 : 15 PM on day 1301 of my journey towards independence and I’ve managed to pray, brush my teeth, read Job 35, publish my Disability of the Day feature, publish my Kid of the Week feature, feed myself a peanut butter sandwich for breakfast, promote my Eradicate AIDS campaign – still no luck – and hang out with family.

This morning I realized that if you have nothing good to say it’s best not to say anything at all sometimes when we feel attacked our instinct is to retaliate but I’ve figured out that an eye for an eye only makes the whole world blind and that sometimes silence speaks louder than words. Do you speak even when you have nothing good to say?

Day 1300: “Undefeated” by Jason Derulo

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Wish I knew then what I know now, but, I, I

Can’t change the past no matter how I try, I

So I’ma get up and dance, you know

Cause this might be my last chance (whoa)

Like there’s nobody around

Even gravity can’t keep me down

Everybody get it started

I’m on top of the world, what a feeling

Whoa, oh, oh, oh, oh, oh

I’m undefeated, undefeated (yeah)

No one told me what I could be

Now I’m walking on air, what a feeling

Whoa, oh, oh, oh, oh, oh

I’m undefeated, undefeated, tonight

– Jason Derulo, “Undefeated”

It’s 12 : 00 PM on day 1300 of my journey towards independence and I’ve managed to pray, brush my teeth, read Job 34, publish my Disability of the Day feature, feed myself bran flakes for breakfast and promote my Eradicate AIDS campaign – still no luck.

Yesterday I heard “Undefeated” by Jason Derulo again I LOVE it because it reminds of the fact that I’m still here undefeated in spite of everything I’ve been through. Listen to “Undefeated” by Jason Derulo below:

Day 1299: Trying my best

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All I can do is try my best and when my best is not good enough I have to get up and try my best the next day – that’s what I realized this morning.

It’s 12 : 20 PM on day 1299 of my journey towards independence and I’ve managed to brush my teeth, pray, publish my Disability of the Day feature, read Job 33, feed myself egg with bread for breakfast, promote my Eradicate AIDS campaign – still no donations since last week Tuesday but I know that both God and I are working hard so Eradicate AIDS should get a cash injection pretty soon from where I don’t know but I do know it’s coming- practice sitting up straight to strengthen my core muscles and make sandwiches for our sisi’s (housekeeper’s) neighborhood with sisi’s help as part of Virginia’s Sandwich Run (thank you sisi for all your help).

Last night things weren’t going well for me at all and looking back on it this morning I realized all I can do is try my best and when my best is not good enough I have to get up and try my best the next day. Do you get up every day and try your best regardless of what happened the previous day?

Day 1298: Judge not your fellow man

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Judge not your fellow man – that’s what I keep learning.

It’s 12 : 55 PM on day 1298 of my journey towards independence and I’ve managed to stretch my hamstrings, brush my teeth, practice sitting up straight to strengthen my core muscles, pray, feed myself bran flakes for breakfast, read Job 32, publish my Disability of the Day feature and promote my Eradicate AIDS campaign – no donations in 9 days but I have an idea and if it works my donation drought will be a thing of the past.

This morning I was thinking about how judgemental I can be back in the day I thought people who invested in the stock market were the scum of the earth but now I realize that they are just trying to grow their money and create a better life for themselves and their families. Are you a judgemental person?

Day 1297: Shocking comments on the Dear Future Mom video

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The world is not of the opinion that every life has value – that’s what I keep realizing.

It’s 1 : 02 PM on day 1297 of my journey towards independence and I’ve managed to pray, brush my teeth, read Job 31, publish my Disability of the Day feature, feed myself bread and eggs for breakfast, promote my Eradicate AIDS campaign – no donations so far today either it’s been 8 days since the last donations but I’ll keep trying and trying and trying until I reach my goal – practice sitting up straight to strengthen my core muscles and stretch my hamstrings

Yesterday I was on YouTube reading people’s comments about the Dear Future Mom video I was shocked and heartbroken to read that some people would abort their children if they found out that their children had Down Syndrome if my parents got rid of me before I was born because I was different everything I’ve done wouldn’t have been done.

Day 1296: DEAR FUTURE MOM – a message from 15 people with Down Syndrome

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“The oldest and strongest emotion of mankind is fear, and the oldest and strongest kind of fear is fear of the unknown” ― H.P. Lovecraft, Supernatural Horror in Literature

It’s 12 : 20 PM on day 1296 of my journey towards independence and I’ve managed to pray, brush my teeth, read Job 30, publish my Disability of the Day feature, feed myself bread with egg for breakfast, promote my Eradicate AIDS campaign – no donations so far today – practice sitting up straight to strengthen my core muscles, go out with my parents – it’s March holidays here in South Africa school’s out for a week, my brother’s at a badminton tournament and my sister’s at med school so it’s just my parents and I 24/7 I love my parents but it being just the three of us makes me wonder if this is what my future is going to be like when my brother leaves home just thinking about it freaks me out my parents are great but I don’t want to live with them for the rest of my life I want to be out there working hard and having fun – stretch my hamstrings and continue promoting my campaign – still no luck.

Yesterday I watched DEAR FUTURE MOM – a heartwarming message from 15 people with Down Syndrome to a future mom of a child who has Down Syndrome – and I thought it was worth sharing. Watch DEAR FUTURE MOM below: