Tag Archives: special needs

Day 1394: “All of Me” by John Legend

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‘Cause all of me

Loves all of you

Love your curves and all your edges

All your perfect imperfections

Give your all to me

I’ll give my all to you

You’re my end and my beginning

Even when I lose I’m winning

‘Cause I give you all of me

And you give me all of you, ohoh

– John Legend, “All of Me”

 

It’s 7  : 01 PM on day 1394 of my journey towards independence and I’ve managed to pray,  read Psalm 81,  publish my Disability of the Day feature, brush my teeth,  feed myself a peanut butter sandwich and bananas for breakfast and go visit my sister’s friend wit my sister

 

This morning I heard “All of Me” by John Legend I loved the song it’s hauntingly beautiful every human being hopes to be loved in the way described in the song. Listen to “All of Me” by John Legend below:

Day 1393: Do you believe in yourself for all those who don’t?

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Believe in yourself for all those who don’t – that’s what I have to keep reminding myself.

 

It’s 12  : 00 PM on day 1393 of my journey towards independence and I’ve managed to pray,  read Psalm 80,  publish my Disability of the Day feature, feed myself a peanut butter sandwich and bananas for breakfast,  promote my Eradicate AIDS campaign – still on $1 088.84 hopefully more money can be raised for the  the Elton John Aids Foundation (UK) in the next 12 days if not oh well $1 088.84  is not bad 🙂 – and hang out with my family.

 

Yesterday one of my loved ones told me that he was going to make me the beneficiary of his pension I appreciate the fact that my loved ones want to provide for me but what I hear when they say stuff like I’m going to make you the beneficiary of my pension  or our money is your money  is I don’t believe you can provide for yourself so I’m going to provide for you  which is insulting considering I have held down jobs in the past and know that I am capable of doing it again.  Do you believe in yourself for all those who don’t?

Day 1392: Marketing Food to Children: Anna Lappe at TEDxManhattan

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“Even roaches won’t eat McDonald’s. Neither will any of the Donalds I know.
” ― Jarod Kintz, Sleepwalking is restercise

 

It’s 12  : 57 PM on day 1392 of my journey towards independence and I’ve managed to pray, read Psalm 79,  publish my Disability of the Day feature,  publish my Kid of the Week feature, promote Eradicate AIDS campaign – no donations so so far today but my friend, Jerrin, donated $14 yesterday (thank you so much Jerrinchachen) which brings my total raised to $1 088.84 with 12 days to go:) – brush my teeth, feed myself a-avocado and chicken sandwich for breakfast and chat to my mom  on Skype.

 

Yesterday I watched Marketing Food to Children: Anna Lappe at TEDxManhattan – an eye-opening and scary Ted Talk about how the fast food industry markets to children – needless to say I was shocked by the lengths that fast food companies go to in order to sell their products to kids. Watch Marketing Food to Children: Anna Lappe at TEDxManhattan  below:

Day 1390: Upsee by Firefly – Debby Elnatan

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Necessity is the mother of invention – that’s what I keep realizing.

 

It’s 1  : 01  PM on day 1390 of my journey towards independence and I’ve managed to pray, brush my teeth, read Psalm 77,  publish my Disability of the Day feature, feed myself  an avocado sandwich  for breakfast and promote my Eradicate AIDS campaign – still on $895.54 but I would like to thank my friend, Laura, for going above and beyond to help me promote Eradicate AIDS (thank you, Laura, for supporting me in everything I do).

 

This morning I came across the Upsee – a harness invented by a mom of a boy with Cerebral Palsy to help him walk – watching the Upsee in action I couldn’t help wishing my parents had an Upsee when I was growing up. See the Upsee in action below:

Day 1389: Self-discipline – A lesson taught to me by Cerebral Palsy

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Cerebral Palsy has taught me self-discipline – that’s what I keep realizing.

 

It’s 12  : 31 PM on day 1389 of my journey towards independence and I’ve managed to stretch my hamstrings, practice sitting up straight to strengthen my core muscles, practice sitting up straight to strengthen my core muscles, brush my teeth, pray,  read Psalm 76,  publish my Disability of the Day feature, feed myself  Chapati and vegetable curry for breakfast  and promote my Eradicate AIDS campaign – still on $895.54.

 

This morning I woke up and did my hamstrings stretches even though I knew it would hurt like hell when you have a condition like Cerebral Palsy you do what you have to do even when you don’t want to which serves you well in life because everything in life requires self-discipline.  Have you learned unexpected lessons from your challenges?

Day 1388: The world doesn’t revolve around me

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The world doesn’t revolve around me – that’s what I have to keep reminding myself.

 

It’s 12  : 15 PM on day 1388 of my journey towards independence and I’ve managed to pray,read Psalm 75,  publish my Disability of the Day feature,  practice sitting up straight to strengthen my core muscles, stretch my hamstrings and promote my Eradicate AIDS campaign – still on 89% I just want to cry I thought if I worked hard I would reach all my goals eventually but now I’m not so sure I’ve literally asked everyone I can think of to help me sadly it seems nobody even cares enough to share my Facebook statuses about my campaign.    .

 

This morning I was bummed about the underwhelming response to my campaign until I remembered that the world doesn’t revolve around me it is a sad but true fact of life that most people only watch out for themselves and their loved ones. Are you able to cope with the fact that people may not react the way you want them to because you know that the world doesn’t revolve around you?

Day 1385: Young Boy Refugee Risking Life on Journey to School

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Stop the hate just stop it– that’s my message to the world.

 

It’s 3  : 14 PM on day 1385 of my journey towards independence and I’ve managed to pray, read Psalm 71,  publish my Disability of the Day feature,  publish my Kid of the Week feature, promote Eradicate AIDS campaign – no donations so so far today but my friend, Stan Faryna,  donated $10 yesterday (thank you so much Stan  ) check out the beautiful post Stan wrote about women called The Wonder That Is Woman –    and have lunch with family and friends.

 

This morning I came across Young Boy Refugee Risking Life on Journey to School – a video about eight-year-old Dieme who has to cross the border from Uganda to war-torn DRC  every day to get to school – what struck me about this video is Dieme’s wisdom at such a young age he knows that education is his ticket out of poverty. Watch Young Boy Refugee Risking Life on Journey to School below:

Day 1384: Staying grateful

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There’s always something to be grateful for – that’s  what I keep realizing

 

It’s 5  : 02 PM on day 1384 of my journey towards independence and I’ve managed to brush my teeth, watch movies, read Psalm 71,  publish my Disablity of the Day feature and spend time with my sister and her friend.

 

This morning I realized there’s always something to be grateful for sure living with Cerebral Palsy sometimes makes me feel like I’m living in a body out of a Sci-Fi movie (I know what I want to do and I know how to do it in theory but I can’t execute the movements) but I’m relatively healthy. Do you force yourself to be grateful even when you feel like there’s nothing to be grateful for?

Day 1382: It only takes one moment

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It only takes a moment to turn a whole day around– that’s  what I want people to know.

 

It’s 12  : 25 PM on day 1382 of my journey towards independence and I’ve managed to pray, brush my teeth, read Psalm 69,  publish my Disability of the Day feature, feed myself  bran flakes  for breakfast,  promote my Eradicate AIDS campaign – still on 88% things could be worse I suppose – and hang out with family.

 

This morning I was having a horrible time of it I felt like every door I knocked on was being slammed in my face until I put on some music and started singing along because I realized life was too short and too beautiful to get bogged down by the small things.

Day 1381: What Would You Do?

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Evil truly does prevail when good people stand by and do nothing– that’s what I keep realizing.

 

It’s 12  : 05 PM on day 1381 of my journey towards independence and I’ve managed to pray, brush my teeth, read Psalm 68,  publish my Disability of the Day feature, feed myself  egg with bread  for breakfast, promote my Eradicate AIDS campaign –still on $885.54 – practice sitting up straight to strengthen my core muscles, stretch my hamstrings and hang out with my sister .

 

Recently I’ve sort of become obsessed with What Would You Do? – a television show which brings to life scenarios of conflict or illegal activity in public settings to see if bystanders will intervene – I LOVE the show because it shows the goodness of human beings. Watch some of my favourite clips from What Would You Do? below: