Tag Archives: Family

Day 300

You don’t have to do everything exactly like everybody else does – that’s what I learned today 🙂

t’s 7: 26 PM on day 300 of my journey towards independence and I’ve managed to brush my teeth, have breakfast with my entended family at Wimpy – my aunt and uncle have retired and moving to Canada this month and they wanted to treat us to breakfast once last time it was a bit of a hassle for my mother to get both my grandma and I ready but other than that it was fun 🙂 – publish my Kid of the Week feature, tweet about my Clean Water For All Campaign – no luck – read 7 years ago (give or take) on 4 Little Monkeys – a blog post about through
the unexpected – feed myself rice and curry for dinner and brush my teeth once more.

This morning while at breakfast everybody else was eating with a fork and knife and although there was a part of me that wanted to try it I knew that it would only end in disaster so I decided to do what worked for me – I asked my sister to cut the bacon and ate it with my hands along with a couple of slices of toast – and that I guess is my message to all of you, you don’t have to follow protocol if you can’t just do what works for you. Do you waste your life trying to do everything exactly right?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 299

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Whoever said every cloud has a silver lining was telling the God’s honest truth – that’s what I learned today.

It’s 7: 43 PM on day 299 of my journey towards independence and I’ve managed to brush my teeth, tweet about my Clean Water For All Campaign – no luck –read My Kid Will Never Go To College on Kveller, That was Then, This is Now on Chaing Rainbows and Special needs things that make you go “ARRRGH!” on Love That Max – reading all three of these blog posts has made me fall in love with blogging all over again because although all three of these people are parents to kids who have “special needs” they all have different perspectives – feed myself rice and curry for lunch, prepare my Kid of the Week feature for tomorrow, listen to music, tweet about my campaign some more – still no luck 🙁 – feed myself avocado on whole-grain bread for dinner and brush my teeth once more.

As I’ve mentioned in previous posts my grandmother has what appears to be Dementia – my family has taken her to a doctor and he says it’s just part of the aging process – and although I am deeply saddened that her mental health has taken a turn for the worse there is a tiny part of me – I can’t believe I’m actually typing this I feel SO guilty – that is happy that I am no longer the “sick one” in this family before I felt SO claustrophobic because my mother was with me 24/7 – apart from when she was sleeping or at work – now she’s too busy tailing my grandma to care what I’m doing. Do you see the silver lining in your dark cloud?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 298

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Agreeing to disagree is the only way you can be a creator of world peace – that’s what I learned today 🙂

It’s 8: 59 PM on day 298 of my journey towards independence and I’ve managed to brush my teeth, watch TV, feed myself leftovers from the barbecue for breakfast, tweet about my Clean Water For All Campaign – no luck – feed myself rice and curry lunch,go to physiotherapy – the thirty minutes flew by in the blink of an eye 🙂 –watch some more TV, feed myself Chapati and fish curry for dinner and brush my teeth once.

Yesterday I tweeted Hello World 🙂 What are you grateful for today? I am grateful that I see God in everybody and everything 🙂 and David (@DavetheAtheist) replied Check your vision. Sounds like you’re hallucinating. #atheism to which I said With all due respect I disagree with you and he responded Doesn’t change facts which led to us having a heated back a forth conversation which ended with him saying What an observation. So do you, it’s just a shame that you refuse to accept truth. – I had said that he had a right to his beliefs – and to that I say there is not just one truth but six billion – one for every human being on this planet. Do you have enough faith in your beliefs to be around people who openly disagree with you?
Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 296

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You teach people how to treat you. – Dr. Phil C. McGraw

It’s 10: 23 PM on day 296 of my journey towards independence and I’ve managed to brush my teeth, feed myself toast, mutton sausage and fried tomatoes for breakfast, watch TV, feed myself rice and curry for lunch, do some research on Dementia – it breaks my heart to see my granny becoming less and less of herself and unfortunately it seems that all I can do is sit back and watch because the treatment options for Dementia are very limited 🙁 – read two of the most recent post on Love That Max and Top 9 why you should blog on The Nicky Blog – all the blog posts I read were very good but since I’d never read Nicky’s blog before naturally I was more excited to read that and the fact that I could attest to the 9 reasons why you should blog made it all the better 🙂 – tweet about my Clean Water For All Campaign – yesterday evening Tana (@woveneye3) made a PayPal donation which I will donate to my campaign on her behalf ASAP and Bonnie (@bonnie67) made two more donations – you guys are AWESOME thank you SO much for your support 🙂 – play host to my extended family who came over for dinner – my aunt almost ended up in tears when my father said grandma didn’t remember the names of her girl children because they didn’t take of her my father didn’t mean anything by it but I saw my aunt’s face when he said that and she was REALLY hurt 🙁 – and brush my teeth once more.

Last night after we came back from dinner at my uncle’s a community member of ours – let’s call him M – called and said he would be coming to our house in ten minutes to borrow our GPS and immediately my dad said with urgency to no one in particular M is coming take Nisha to the other room and in that moment instead of feel less than and going to my room like I usually did I said rather nonchalantly what’s wrong if I’m here to which he responded oh no nothing I just thought you wanted to pee which I did not believe for a second but for the sake of keeping the peace I let it go and asked my mother to help me in the bathroom. Have you taught people to treat you badly?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 292

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Having a unique perspective on the world can be an extraordinary asset, whether it be in the labour force or the marketplace of ideas or simply as a good friend. – Shasta (author of Outrageous Fortune)

It’s 8: 26 PM on day 292 of my journey towards independence and I’ve managed to brush my teeth, feed myself Batura for breakfast, go to my brother’s friend’s holy communion party – it was nice enough I made friends with the pastor’s wife who stuck out like a sore thumb amongst all the Indians – the pastor and his wife were white – in spite of the fact that I was thinking about my grandma most of the time (see the next paragraph to understand why) – tweet about my Clean Water For All Campaign – no luck – and brush my teeth once more.

As you know I have been discriminated against all my life because of my disability which is why I felt sick to my stomach when my entire family decided unanimously that they would leave my grandma in the care of the housekeeper while all of us went to a party although no one else seemed to have any qualms about it. Does your unique perspective on life make it impossible for you to be indifferent towards another?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 291

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Mental illness is a family disease– that’s what I learned today 🙁

It’s 9: 35 PM on day 291 of my journey towards independence and I’ve managed to brush my teeth, – feed myself an egg sandwich for breakfast, tweet about my Clean Water For All Campaign – no luck – help make 40 sandwiches as part of Virginia’s Sandwich Run – I am SO proud of myself 🙂 – feed myself rice and curry for lunch, prepare my Kid of the Week feature for Sunday and brush my teeth once more.

As you know my grandma and I are very close and in honour of the person she used to be I am going to share with you the symptoms of “her” disease in the hopes that it will help you and your family. Take a look:

The Signs of Dementia through All Three Phases

Early

Word-finding difficulty – May be able to compensate by using synonyms or defining the word

Forgetting names, appointments, or whether or not the person has done something; losing things

Difficulty performing familiar tasks – Driving, cooking a meal, household chores, managing personal finances

Personality changes (for example, sociable person becomes withdrawn or a quiet person is coarse and silly)

Uncharacteristic behaviour

Mood swings, often with brief periods of anger or rage

Poor judgment

Behaviour disorders – Paranoia and suspiciousness

Decline in level of functioning but able to follow established routines at home

Confusion, disorientation in unfamiliar surroundings – May wander, trying to return to familiar surroundings

Intermediate

Worsening of symptoms seen in early dementia, with less ability to compensate

Unable to carry out activities of daily living (eg, bathing, dressing, grooming, feeding, using the toilet) without help

Disrupted sleep (often napping in the daytime, up at night)

Unable to learn new information

Increasing disorientation and confusion even in familiar surroundings

Greater risk of falls and accidents due to poor judgment and confusion
Behaviour disorders – Paranoid delusions, aggressiveness, agitation, inappropriate sexual behaviour

Hallucinations

Confabulation (believing the person has done or experienced things that never happened)

Inattention, poor concentration, loss of interest in the outside world

Abnormal moods (anxiety, depression)

Severe

Worsening of symptoms seen in early and intermediate dementia

Complete dependence on others for activities of daily living

May be unable to walk or move from place to place unassisted

Impairment of other movements such as swallowing – Increases risk of malnutrition, choking, and aspiration (inhaling foods and beverages, saliva, or mucus into lungs)

Complete loss of short- and long-term memory – May be unable to recognize even close relatives and friends

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 290

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You should mourn the life you will never have – that’s what I learned today.

It’s 9: 08 PM on day 290 of my journey towards independence and I’ve managed to brush my teeth, feed myself an egg sandwich for breakfast tweet about my Clean Water For All Campaign – Bonnie (@Bonnie67) made another donation – thanks Bonnie 🙂 – tweet about my campaign some more – no further luck 🙁 – watch TV, feed myself custard for lunch, read 10 Reasons My Son’s Cerebral Palsy Is Awesome – a guest post on Love That Max written by Shasta over at Outrageous Fortune – it was a refreshing blog post in that she took everything bad about her son’s Cerebral Palsy and made it good 🙂 – feed myself rice and curry for dinner and brush my teeth once more.

This morning my mother asked my father if my sister didn’t need to apply for her license and that just drove me to tears not because I was jealous of my sister getting her license but because I was sad that I would never get mine and since I didn’t want my sister to feel guilty for being able-bodied when she woke up and asked me why I was crying I blamed it on PMS and held back the rest of my tears until I was alone in the bathroom. Is the life you could have had an elephant in the room or simply a dream that you’ve let go of?
Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 288

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You can’t change what you don’t acknowledge. – Dr. Phil C. McGraw

It’s 8: 35 PM on day 288 of my journey towards independence and I’ve managed to brush my teeth, tweet about my Clean Water For All Campaign – no luck 🙁 – read Love That Max and Ryn’s Tale Book of Days: Livin to the point of tears – my goodness there are some FANTASTIC parents out there 🙂 – watch TV while feeding myself an egg sandwich for brunch, watch some TV while exercising, publish My Book Self – a new page on this blog which will feature all the books that I can remember reading over the course of my twenty year life – feed myself rice and curry for dinnerand brush my teeth once more.

Yesterday evening while I was editing and adding new books to My Book Shelf I couldn’t help but notice that all but four of the books that I had ever read were romance novels and in that moment I had an epiphany I was looking for love in guys – both fictional and real – because I did not feel loved by father and to remedy that I told myself what I wished my father had told me you’re beautiful I am so proud of you. Are you in denial about what you need?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 287

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If you judge people, you have no time to love them. ~ Mother Teresa

It’s 7: 32 PM on day 287 of my journey towards independence and I’ve managed to brush my teeth, feed myself Chapati and beef curry for breakfast, listen to music, feed myself rice and curry for lunch, exercise for fifteen minutes while watching TV, brush my teeth once more –a guest was arriving and I didn’t want to occupy the bathroom while he was here – start preparing My Book Shelf – a page on this blog which consists of all the books I remember reading over the course of my twenty year life – and tweet about my Clean Water For All Campaign – I woke up to find that Bonnie (@bonnie67) made a donation – seven kids most of who have disabilities and she still managed to find the money to make a donation I’ll never get over it – thank you SO much Bonnie 🙂

Yesterday we had some company over at our house and quite unusually I wasn’t lost in thought thinking she probably feels sorry for me while she was talking to me and as a result before she left she handed me R50 and told me to make more sandwiches on her behalf – I had mentioned that I was making sandwiches for our housekeeper’s neighborhood during our conversation – which surprised me considering I didn’t even ask for a donation. Is your inability to connect with people solely due to the fact that you’re constantly judging them?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 286

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Gratitude is the memory of the heart. ~Jean Baptiste Massieu

It’s 7: 21 PM on day 286 of my journey towards independence and I’ve managed to brush my teeth, get one hand out of my jersey’s sleeve – I have got to show my mother that if she continues to help me I’ll either end up institutionalized or worse being a burden on my siblings – spend some time with my cousin – some of things he says about gay people makes me cringe but I still love him like a brother 🙂 – feed myself bun, potato salad and beef curry for brunch, publish my Kid of the Week feature tweet about my Clean Water For All Campaign – no luck – read Do you know where you are going? by Janet Callaway (@janetcallaway) – a very well written and honest blog post about how to get where you’re going in your life 🙂 – and feed myself bun and grilled chicken for dinner.

Yesterday my father was talking to cousin and saying stuff like we don’t go anywhere, we don’t do anything, we don’t earn a lot of money and in that moment I realized that he would never have enough of anything because he couldn’t see what he already had. Do you have amnesia of the heart?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!