Tag Archives: Cerebral Palsy

Day 2312: The Key to Life

The key to life is to keep moving and striving regardless of whether you’ve succeeded or failed – that’s what I’ve realized.

 

It’s 8: 48 AM on day 2312 of my journey towards independence and I managed to pray and read Psalm 40:3 (today i’m going to start working on small campaigns for two South African organizations [i’m going to go about it semi-quietly because it will be hard for people outside of South Africa to participate]).

 

This morning I realized that the key to life is to keep moving and striving regardless of whether you’ve succeeded or failed (if you feel like you’ve succeeded it’s your responsibility to build on that success and if you feel like you’ve failed try, try and try again until you succeed… no matter what just keep moving).

Day 2311: Mornings after my campaigns

Striving to outdo yourself brings with it a lot of pressure but it’s better than not striving all ― that’s what mornings after my campaigns have taught me.

 

It’s 9: 45 AM on day 2311 of my journey towards independence and I managed to pray and read Psalm 100: 1 ( maybe i’m going to take a break today and start working on my 2017 goals tomorrow).

 

This morning like all the other mornings after a campaign I feel a little lost even though I have big goals for the year a tiny part of me (that I’m trying to surpass) is always afraid that whatever I do next won’t be as big as all the things I did previously although I guess there’s no rule that I have to do outdo myself it’s just what I always strive to do.

Day 2310: 25 Smiles Campaign Over. Thank you all

“Every new beginning comes from some other beginning’s end.” – Seneca

 

It’s 10: 45 AM on day 2310 of my journey towards independence and I managed to pray, have breakfast, read Proverbs 16 : 9 and end my 25 Smiles Campaign – yesterday aunty and uncle donated $62 and Samantha And Kev donated $250 which helped end the campaign on a high note with  $10 317.04 [enough for 41 smiles] (SO SO SO GRATEFUL to everyone who has supported this campaign ).

 

Today marks the end  of my 25 Smiles Campaign benefiting  Smile Train  ninety-seven people (including me and my family) have made donations to this campaign and between us we’ve donated $10 317.04 which is awesome considering initially I only aimed to raise $6 250 (enough to sponsor 25 cleft surgeries) i’m so so thankful to everyone who has supported this campaign and me. Thank you Sneha Abraham, Frank Burns, Gaynor Young and Barbara Royce, Justine Perry, Madalyn Sklar, Catherine Cook, @Maewmb, David Boutin, Sarah Britten, Jim Mahar, Nancy, Rema aunty, Paul and Juliet Merrell of Big Planet Radio, Bev Bern, Julie and Don Faughnan, Amit Abraham, Benjamin and Amelia, Athira Issac, Liesel, Priyachechi, Joubert Botha, LA Janssens, Anatoli, Arun Babu, Stan Faryna, My Paper Parties, Happy Odd Girl, Adam Butler, Deepuchachen, Tinuchachechi and Jerynchachen, Duane, My Paper Parities 2, Joyce Childers, Jacqui Mackway -Wilson of Go Social SA, Kevin B (on behalf of Lesley), Meg Guegan, Susanchechi, Reshma Jacob, uncle Abraham Matthew, Debbie McMannis, Anish Krishnankutty, Ellyn Harris, Zak Ebrahim, author of The Terrorist’s Son: A Story of Choice, Joseph John, Reshma Ravi, Wayne Mansfield, Jinuchachen, Samuel Kochukanayathil, Laura, Tim Fargo, author of Alphabet Success – Keeping it Simple. My Secrets to Success and founder of Social Jukebox, Shari Mason, Benjin Thomas, Bruce Sallan, Nithin Yohannan, Juliana Mullan, Fireman Max, Yusuf Abramjee, Nisha Kotecha, Deepthi Abraham, Jiya, Seema, Anush Alex, Daleen Bernard, Teresa Williams,  Stacey Chassoulas, Maddie, Nay731, MJ Merk, Eapen family, Preethachechi and Tonychachen,  Linda Mastroianni, Dr. Ann Abraham, Tsitsikamma Canopy Tour , Eapen family, Bithun Babu, Sherilchechi, Tony Seifart,  Benedict Joson, Ashwell Gleason, Jacqui Cooks, uncle and aunty. Samantha and Kev  and everyone else who chose to donate anonymously for your generous donations. Thank you uncle Abraham Matthew, Jacqui Mackway-Wilson, Stephanie Young, Susannah Schaefer,  Sue-Ann Allen, Caryn Gootkin, Britt Michaelian,  Lakshmi Pillai, Akhil Tomy, Thara, Anjali, Sherin,  Pamela Eapen, Good News Shared, ViralFlash, GoodThingsGuy, 52 Feminists, Smart ZAR Girls, Tsitsikamma Canopy Tour,  Catherine Constantinides, Nicolette Human, Mireesha Narsai, Nk Obi, Kerri Stein, Beverly,  Andrea, Kalay Maistry and everybody else for helping spread the word about this campaign.

 


 

Day 2309: Platforms, Trust and Responsibility

With the platforms we have come trust and responsibility ― that’s what I have realized

 

It’s 11: 03 AM on day 2309 of my journey towards independence and I managed to  pray, have breakfast, spend time with family, read Isaiah 2:22   and work on my  25 Smiles Campaign    –raised $10 005.04 only  $2 494.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ) (my family members gave me $61 in cash for the campaign i’ll donate it on their behalf as soon as my dad returns from work this afternoon).

 

 

This morning I realized that with the platforms we have come trust and responsibility (people just hand me their money [for me to donate in their behalf to my campaigns] it scares me to death how much people trust me I know I would never misuse any money people give me for charitable purposes I value my character too much to do that but still sometimes I wish people didn’t trust me so blindly it’s so much pressure for someone my age).

 

Day 2307: 2017 Reading List

“Good friends, good books, and a sleepy conscience: this is the ideal life.” ― Mark Twain

 

It’s 1: 02 PM on day 2307 of my journey towards independence and I managed to  -pray, read Matthew 2: 11-12  and work on my  25 Smiles Campaign    – yesterday   Jacqui Cooks   donated $15 and today  Stacey Chassoulas donated $25  (thanks guys 🙂 )  which brings the total  raised to $10.005.04 only  $2 494.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Today I was thinking about all the books I want to read this year and as per usual I made a list (I love lists). Take a look:

 

2017 Reading List

 

  1. Smartcuts by Shane Snow (I started reading it but got distracted by life and the book I’m currently reading The Book of Joy by 14th Dalai Lama, Desmond Tutu, and Douglas Abrams)
  2. Purpose Driven Life Journal: What on Earth am I Here For? by Rick Warren (a friend bought it for me)
  3. Born A Crime by Trevor Noah
  4. You Are Never Alone by Criselda Dudumashe
  5. Lord of the Flies by William Golding
  6. Imtiaz Sooliman and the Gift of the Givers: A Mercy to All by Shafiq Morton

 

Post updated February 26, 2017

Day 2306: My Labels and Living In Spite of Them

“I am a rare species, not a stereotype.” ― Ivan E. Coyote

 

It’s 11 : 28  AM on day 2306 of my journey towards independence and I managed to pray, have breakfast, read Ecclesiastes 3:1-8,    and work on my  25 Smiles Campaign    – yesterday my family donated $300 which brings the total  raised to $9 965.04 only  $2 534.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Yesterday my family found my Grade 2 report and I discovered that I, in fact, have Cerebral Palsy Quadriplegia with spasticity in all four limbs I had always thought I had Cerebral Palsy Paraplegia it’s not a big deal I know they’re just words it’s just I always had an image of what quadriplegics were and I don’t match that image (maybe my parent did me a huge favour by not putting too much emphasis on my labels if I had known the extent of my physical limitations I probably wouldn’t have tried half the things I’ve tried).

 

Day 2305: “Unstoppable” by Sia

I’m unstoppable
I’m a Porsche with no brakes
I’m invincible
Yeah, I win every single game
I’m so powerful
I don’t need batteries to play
I’m so confident, yeah, I’m unstoppable today
Unstoppable today, unstoppable today
Unstoppable today, I’m unstoppable today

– Sia, “Unstoppable”

 

It’s 10 : 20  AM on day 2305 of my journey towards independence and I managed to pray, watch Child Genius – the kids in that show are so smart they make me feel stupid LOL 🙂 – read Lamentations 3:22-23, have breakfast   and work on my  25 Smiles Campaign    – yesterday a $10 donation was made  which brings the total  raised to $9 665.04 only  $2 834.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

A few days ago I heard “Unstoppable” by Sia it’s such a great song – the new theme song of my life. Listen to “Unstoppable” by Sia below:

 

Day 2304: Staying myself in a vain world

Learn to live in a vain world without feeling the need to change yourself  – that’s my message to the world.

 

It’s 11: 04 AM on day 2304 of my journey towards independence and I managed to -pray, read Colossians 3:9-10   and work on my  25 Smiles Campaign    – Ashwell Gleason  donated $5   (thanks Aswell 🙂 )  which brings the total  raised to $9 655.04 only  $2 844.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

 

Recently I went to an event and this lovely woman approaches us (me and my family) looks at me and asks my mom what’s wrong with her face (I have a few moles and blackheads) I was shocked by the bluntness of the question but I won’t suddenly start wearing make-up to look flawless because some people have a problem with the way I actually look I’m human and imperfect I refuse to put a mask on for the world I’d rather have a flawless heart, a flawless spirit and a flawless soul than a flawless face. Take me or leave me but world I refuse to let you change me.

Day 2302: Small Acts of Heroism

Heroism is also in the small acts – that’s what I’d like the world to know.

 

It’s 9: 50 AM on day 2302 of my journey towards independence and I managed to  pray, read     Isaiah 65: 17  and work on my  25 Smiles Campaign    –raised $9 625.04 only  $2 875.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

This morning I realized heroism is also in the small acts it’s letting someone else have the last piece of cake, it’s giving someone right of way in traffic, it’s letting someone go ahead of you in line at the grocery store… it’s putting other people’s needs and wants before your own.

 

Day 2300: 6 Lessons Learned in 2016

Every year brings with it its own lessons and those who don’t learn from their mistakes are doomed to repeat them– that’s what I realized.

 

It’s 11: 39 AM on day 2300 of my journey towards independence and I managed to  pray, read Romans 8: 28 and work on my  25 Smiles Campaign    –raised $9 625.04 only  $2 875.96 more to raise to reach my second goal of raising $12 500 for Smile Train before Jan 10 2017 (SO SO SO GRATEFUL to everyone who has supported this campaign so far ).

 

Today being the last day of the year I’ve decided to share some lessons I’ve learned in 2016. Take a look:

 

6 Lessons Learned in 2016

 

  1. Christianity is really simple people make it complicated – all the Bible basically says is have faith, be a good human being and do the right thing.
  2. With help I can do anything – going ziplining taught me that with help I can do anything (before that I thought doing physical things was out of the question for me).
  3. The people who really love you are those who saw you when you were invisible to the rest of the world – this year has taught me that most people will applaud you and claim to know you when times are good but those that really love you are those who saw you and those who were there for you when you were invisible to the rest  of the world.
  4. Fear is a feeling and courage is a decision – most of the things I did this year I did in spite of being afraid not because I wasn’t afraid which made me realize fear is a feeling and courage is a decision.
  5. Without health everything else is a meaningless – there were a few months this year that I just kept getting sick (I couldn’t catch a break) which makes me appreciate my health.
  6. The truth is stranger than fiction – Donald Trump is going to be President of the United States of America (yikes) and the UK will exit the EU (double yikes).