Tag Archives: Cerebral Palsy

Day 2368: A Beautiful Life Is…

A beautiful life is made up of a lot of small, meaningful moments strung together – that’s what I’ve come to believe.

It’s 11 : 47 AM on day 2368 of my journey towards independence and I managed to pray, have breakfast, read Ephesians 3:16-21 and learn a new word – Definitions for newspeak
(sometimes initial capital letter) an official or semiofficial style of writing or saying one thing in the guise of its opposite, especially in order to serve a political or ideological cause while pretending to be objective, as in referring to “increased taxation” as “revenue enhancement.”

Recently I was taking a look at my Moments Journal – a journal in which I am recording all the awesome moments of 2017 (thank you to Nisha Kotecha for giving me the idea) – and I noticed that most of the moments that I considered awesome were either moments of kindness (done by me or done in honour of me) or they were moments during which I chose to be fully present and appreciate the simple things which leads me to believe a beautiful life is made up of a lot of small, meaningful moments strung together.

Day 2367: International Women’s Day 2017

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“I just love bossy women. I could be around them all day. To me, bossy is not a pejorative term at all. It means somebody’s passionate and engaged and ambitious and doesn’t mind learning.” –Amy Poehler

It’s 11 : 38 AM on day 2367 of my journey towards independence and I managed to pray, have breakfast, read Daniel 10:12 and learn a new word – Definitions for portmanteau
Also called portmanteau word. Linguistics. a word made by putting together parts of other words, as motel, made from motor and hotel, brunch, from breakfast and lunch, or guesstimate, from guess and estimate.

Today is international Women’s Day and I’ve been thinking about both the opportunities and responsibility that come with being a woman today we as women have many opportunities that those who came before us didn’t and with that comes a responsibility to create a better present for young girls today and a better future for girls not yet born. Happy International Women’s Day everyone.

Day 2365: God, Me and Thieves

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You’ve got to thank God for the close calls and near-misses – that’s what I’ve realized.

It’s 12 : 05 PM on day 2365 of my journey towards independence and I managed to pray, read Proverbs 14: 27, have breakfast, and learn a new word – Contemporaneous (con·tem·po·ra·ne·ous) adj. Originating, existing, or happening during the same period of time: “The contemporaneous court cases for the two defendants.”

Yesterday there was a break-in somewhere in our neighbourhood and the thieves escaped by jumping over our fence I think someone from the security company even fired a shot thankfully nobody was hurt and I was inside all I saw was the security guy running across our yard and returning to ask my mom to open the gate it has gotten me thinking though I have this habit of sitting outside enjoying nature but yesterday at the time I was inside on my laptop I know that was God watching out for me (thanks God I promise to make the most of this life).

Day 2363: Lent 2017

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“What are you giving up for Lent?” It’s a question a lot of people will get these next few days. If you want to change your body, perhaps alcohol and candy is the way to go. But if you want to change your heart, a harder fast is needed. This narrow road is gritty, but it isn’t sterile. It will make room in ourselves to experience a love that can make us whole and set us free. – Pope Francis

It’s 11 : 22 AM on day 2363 of my journey towards independence and I managed to pray, read 2 Samuel 22: 28 have breakfast and learn a new word – Tumult [tu·mult] n. Confusion or disorder. A loud, confused noise, esp. one caused by a large mass of people. “He quickly became aware of the violent tumult behind the trees.”

Last Wednesday marked the beginning of Lent and since my doctor doesn’t approve of me fasting I have decided to give up impatience for Lent I know it won’t be easy but I’m going to try my best to be patient with myself and others.

Day 2361: Honesty, Being Uncomfortable and My Moment of Character

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Be honest even when it’s uncomfortable – that’s my message to the world.

It’s 11 : 33 AM on day 2361 of my journey towards independence and I managed to pray, have breakfast, read Philippians 2:3 and learn a new word – Definitions for malfeasance
1. Law. the performance by a public official of an act that is legally unjustified, harmful, or contrary to law; wrongdoing (used especially of an act in violation of a public trust).

A few days ago somebody asked me about the books she had given me a few weeks ago and although it made me uncomfortable in the moment I answered honestly and rather sheepishly I donated one of them to the library (I knew I was never going to read it because books about history aren’t really my thing so I donated it to the library) I am so proud that I didn’t lie my way out of discomfort that was one of my moments of character.

Day 2360: An Open Letter to Moms of Differently-Abled Kids

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When doors don’t open that’s life telling you that you should build your own – that’s my message to the world.

It’s 12 : 00 PM on day 2360 of my journey towards independence and I managed to pray, have breakfast, read Titus 2:11, work on a very special future blog post (can’t say much yet but it will be awesome) and learn a new word –Sartorial [sar·to·ri·al] adj. Of or relating to tailoring, clothes, or style of dress. “Sartorial taste; “Sartorial elegance.”

Recently I wrote an open letter to moms of differently-abled kids and I’ve been trying to get websites with that target market to publish it but nobody seems keen so I’m just going to publish it myself. Read An Open Letter To Moms of Differently-Abled Kids below:

An Open Letter to Moms of Differently-Abled Kids

Dear mom-of-an-extra-special-child,

My name is Nisha Varghese (you may not know I even exist but I’ve seen you around). I’ve always wanted to introduce myself but I never knew what to say that wouldn’t sound awkward or weird so I’m writing you this letter.

I see you with your child and I so admire how you just let your child be – you don’t try to make your child act any particular way in order to “fit in” because you know it would be unfair of you to ask that of your child. I apologize for the people who are cruel out of genuine ignorance please know it’s got nothing to do with you or your child and everything to do with them. I know that it’s not easy being a mom to a child with extra needs (I hate the term “special needs”) and I also know there are days you mourn the person your child could have been and the family you could have been I know this because I see it in my mother’s eyes sometimes (it’s okay mom I know you still love me).

You are not alone there are families on every corner of this Earth fighting the good fight and celebrating every inchstone because we know how hard-won those are. Thanks for all you are and all you do because of you and my mother people like your child and I have a fighting chance at this life. You’re an AMAZING mother.

Yours sincerely,

Nisha Varghese

Day 2359: “Hannah Brencher: Love letters to strangers”

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“The mere fact that somebody would even just sit down, pull out a piece of paper and think about someone the whole way through, with an intention that is so much harder to unearth when the browser is up and the iPhone is pinging and we’ve got six conversations rolling in at once, that is an art form that does not fall down to the Goliath of “get faster,” no matter how many social networks we might join.”- Hannah Brencher, “Hannah Brencher: Love letters to strangers”

It’s 12 : 15 PM on day 2359 of my journey towards independence and I managed to pray, have breakfast, read 1 Peter 1:21 and learn a new word – Definitions for bumbershoot
Informal: Often Facetious. an umbrella.

Recently I watched “Hannah Brencher: Love letters to strangers” – a Ted Talk by Hannah Brencher about the power of letter writing and how she is using it to make a difference – I was taken aback by the impact that letter writing still has in this day and age I guess it makes sense when you get a letter you know that you mattered enough to someone for them to sit down and write to you. Watch “Hannah Brencher: Love letters to strangers” below:

Day 2357: Why God Says No

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God’s no is always a redirection – that’s what I was reminded of yesterday

It’s 10 : 24 AM on day 2357 of my journey towards independence and I managed to pray, have breakfast, go to church – the sermon was about worry and how we shouldn’t worry – learn a new word – Definitions for runnel 1. a small stream; brook; rivulet. 2.a small channel, as for water.

Yesterday I was thinking about the fact that if I had gone to the Great Moscow Circus yesterday like I wanted to in January then I wouldn’t have been able to participate in the CANSA Shavathon which also took place yesterday (even when we don’t get what we want things work out for the best – God’s no is always a redirection).

Day 2356: Me at CANSA Shavathon 2017

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We should do things not based on convenience or difficulty level but rather on the level of importance – that’s my message to the world.

It’s 12 : 47 PM on day 2356 of my journey towards independence and I managed to pray, have breakfast, read Romans 12: 9-21, go to the CANSA Shavathon – glad to do some good – and learn a new word – Coltish [colt·ish] adj. Energetic but awkward in one’s movements or behavior. Playful, not trained or disciplined. “Coltish horseplay to celebrate their graduation.”

Today I went to the CANSA Shavathon – an annual nationwide fundraising event here in South Africa in support of those affected by cancer – it wasn’t the easiest or most convenient thing for me to do I had to be driven to the mall and pushed around to get to there but in the end I got there and got my hair sprayed it felt good to know I was doing my part to make someone’s journey slightly more bearable (sometimes you have to do that which is hard and inconvenient just because it’s the right thing to do).

Day 2355: My People

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Never forget the people who saw you when you were invisible – that’s my message to the world.

It’s 11 : 36 AM on day 2355 of my journey towards independence and I managed to pray, have breakfast, read 138: 8 and learn a new word – Glower [glow·er] v. Have an angry or sullen look on one’s face; scowl. “The librarian glowered at her for talking too loud.”

Recently I’ve been thinking a lot about the people who saw me when I was invisible those who were my friends when I had not a title to my name and only friendship to offer they are the people I will work to keep in my life because they don’t change with the seasons they will be there for me no matter what.