Category Archives: My journey towards independence

My journey from utter helplessness to independence

Day 2750: I Had The BEST BIRTHDAY EVER. Thank You All

Love is all that matters – that’s what I’ve realized

 

It’s 1 :  46 PM on day 2750 of my journey towards independence and I managed to pray, read Daniel 9:9  and promote my 50 New Feet Campaign benefiting MiracleFeet – A HUGE thanks to Juliet Marrell who donated $25 which brings the total raised to  $13 234 only $5 515 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

 

Yesterday was my 27th birthday and by far my favourite one to-date the day was filled with love and cake. Thank you to everyone who came by, called and sent birthday wishes through social media I felt so loved

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bday cake

Day 2747: Move on with life

Life waits for no person– that’s what I keep realizing

 

It’s 1 : 08 PM on day 2747 of my journey towards independence and I managed to pray,  have breakfast, read Joel 2:12-13  and promote my 50 New Feet Campaign benefiting MiracleFeet –raised  $13 159 only $5 591 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

 

Today will be my first physiotherapy sessions in weeks I know it’s going to be sore because I haven’t exercised in weeks but I’m going to paste a smile on my dial and be a trooper because for me the only alternative to being in pain is being dead and while I know Heaven is awesome God apparently has lots for me still to do here and I’m grateful to still be alive to do it.

Day 2746: I just want to be

Life is a dance one step forward two steps back – that’s what I keep realizing

I’m not finally so great I need a break hope I’ll be better by tomorrow

Today I just stepped on the floor a little too long and my toe started to hurt it’s better now but even a trip to the bathroom is injurious to health some days I wish Cerebral Palsy and it’s complications were not an issue in my life, some days I don’t want to have to fight so hard … some days I just want to be.

Day 2745: Human Rights Day 2018

“Freedom is never voluntarily given by the oppressor; it must be demanded by the oppressed.” – Martin Luther King, Jr.

It’s 2 :  22  PM on day 2745 of my journey towards independence and I managed to pray, read Psalm 27:4  and promote my 50 New Feet Campaign benefiting MiracleFeet – A HUGE thanks to Anonymous who donated $500 which brings the total raised to  $13 159 only $5 591 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

 

Today is Human Rights Day here in South Africa – a day commemorating the 1960 Sharpville Massacre which killed 69 people and injured 180 others– every day I endeavor to make the world a more equal place and in so doing hope to honour the fallen heroes of yesterday. Thank you to the heroes of the 1960 Sharpville Massacre.

Day 2744: The Fearful Me

Be careful what you wish for – that’s my message to the world.

 

It’s 12 : 08 PM on day 2744 of my journey towards independence and I managed to pray,  have breakfast, read Leviticus 20:8 and promote my 50 New Feet Campaign benefiting MiracleFeet –raised  $12 659 only $6 091 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

 

Yesterday as per my request the screw in my toe and the bandages one my arm were removed which I thought would be awesome but I only found out afterwards was that the that the screw was only supposed to be taken out after 6 weeks not 4 (the doctor took it out 2 weeks early because I asked him too if I had known it was 2 weeks too early I wouldn’t have said anything) now I have to be extra careful not to bump toe (every near-miss makes me freak out ) and I’m on another course of antibiotics…  I hate living scared in my own body I’m the one who jumps off cliffs and swings from the treetops this fearful me is not me at all I guess when fear knocks I just have to answer with faith.

Day 2743: Try to Truly SEE

BODY SPIRIT SOUL

It is preferable to have mobility problems than to have eyes that cannot see people’s spirits and souls – that’s what I’ve realized.

 

It’s 1 : 00 PM on day 2743 of my journey towards independence and I managed to pray,  have breakfast, read Psalm 37:8-9 and promote my 50 New Feet Campaign benefiting MiracleFeet –raised  $12 659 only $6 091 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

 

Today I realized with great sadness that while I have mobility problems most of the world has vision problems, as in they can’t see past labels, it makes me sad and also sort of grateful for my life experience I would rather be in a wheelchair and have the ability to truly see people than have all the abilities in the world and still be blind.

Day 2742: Small Great Things by Jodi Picoult

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“Active racism is telling a nurse supervisor that an African American nurse can’t touch your baby. It’s snickering at a black joke. But passive racism? It’s noticing there’s only one person of color in your office and not asking your boss why. It’s reading your kid’s fourth-grade curriculum and seeing that the only black history covered is slavery, and not questioning why. It’s defending a woman in court whose indictment directly resulted from her race…and glossing over that fact, like it hardly matters.” ― Jodi Picoult, Small Great Things

 

It’s 2 : 21 PM on day 2742 of my journey towards independence and I managed to pray,  have breakfast, read 3 John 1:4 and promote my 50 New Feet Campaign benefiting MiracleFeet – raised  $12 659 only $6 091 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

 

Yesterday I finished reading Small Great Things by Jodi Picoult – a book that centres around a African American nurse named Ruth who is charged with murder after a Caucasian  baby dies on her watch but there’s a catch the baby’s White Supremacist parents specifically requested that Ruth be taken off their baby’s case – I love this book because it gives you a view of racism from all the different angles and I found that there are a lot  of parallels between racism and ableism because whether you’re black or in a wheelchair the burden of proof is on you, you have to work ten times as hard to prove you’re competent even before you do anything to suggest otherwise because the automatic presumption is incompetence.

Day 2741: #50NewFeet Campaign Nine Months Later

Teamwork makes all dreams work -that’s my message to the world.

 

It’s 8 : 25 AM on day 2741 of my journey towards independence and I managed to pray,  have breakfast, read 3 John 1:4 and promote my 50 New Feet Campaign benefiting MiracleFeet – raised  $12 659 only $6 091 more to raise by June 17, 2018 to reach my new goal of helping 75 kids with Clubfoot by June 17, 2018.

Today marks the nine month anniversary of my 50 New Feet Campaign benefiting MiracleFeet  so far 108 people have made donations to this campaign and between us we’ve donated $12 659 – enough to provide clubfoot treatments for 50  kids (only $6 091 more to raise to reach my second goal of helping 75 kids with Clubfoot by June 17th  2018)– I am SO AMAZED. Thank you to my parents,  Gaynor Young and B, Priya Thomas, GregThis, BevBern, Stan FarynaDavid BoutinSharon D’Agostino,  A&P, Julie and Don, Simon Magid, Giving Miracles, Meg Guegan, Maya Anne Ninan,Keith, Sendil Devarajan,Bithun Babu, Koshy Thomas, Katy Mannot, Mervyn, Deepu George, Nadine Sander, My paper PartiesLisa DewberyAdel De MeyerPearl Shongwe,Teresa Williams, Sarah, Lisel, Alex Forshaw, Russell Williams, African Greek Godess, East London Malayalee Association, Jose Mammen, Vijay Mammen,Maya’s Papu, Lissy and Shajan, Jindalee Foundation, Debbie Gleason, Laissa Thomas, Captain Cactus,  Asafika, Divine Illunga, Justine Perry, Anisa Sunker, Jerrin Mohan, Pramela Ramesh, Sebastian Schütte, Zarina Walele, Be Good To People, Kevin,Tim Fargo (founder of Social Jukebox), Shahrina Ramphaul, Matt (founder of We Make Good Things Happen), Melise, Mario, Dr. Jacob Mathai, Inna Valesquez Shaun Francis and Family,Tess Thomas, Air To Air Africa Ballooning, Dessy Bo, Julia, Rosly Renil, Piyuse Thomas, Rema Matthews, Roshni, Ciya and Riya,St. Thomas Orthodox Congregation of Southern Africa, J le Grange, OmniMed (Pty ) ltd OmniMed (Pty) Ltd, Anjali   and everyone else who chose to donate anonymously for your generous donations. Thank you  Jacqui Mackway-WilsonStephanie YoungYusuf AbramjeeBritt Michaelian,  Catherine ConstantinidesStacey HollandStan Faryna,  Ryan CummingsHalla Tomasdottir,  Bianca Rungasamy, Criselda Dudumashe Kendall Rayburn,Lisa Dewberry,  Brand South AfricaMelissa JavanDaily Dispatch, Barbara Hollands, Ashraf Gerda and everybody else for helping spread the word about this campaign.

Day 2739: The Only People I Will Ever Take Advice From

Only give advice if you’re committed to being there after people take it – that’s my message to the world.

 

It’s 12 :  37 PM on day 2739 of my journey towards independence and I managed to pray, read Psalm 1:1  and promote my 50 New Feet Campaign benefiting MiracleFeet – raised  $12 559 only $6 191 more to raise by June 17, 2018 to help 75 kids with clubfoot (thanks so much to everyone who has helped out so far).

 

Today I was thinking about all the well-intentioned people who advised me to have the surgery before I had it and I wondered where most of them were now because the only people who remain with me in my recovery are some family and some friends (the first two weeks post-op were positively torturous but what I remember most is my mother who woke up whenever I called to help turn me because I was in so much pain, my sister who called every night (and still calls) to check on my pain levels and tell me to take my pain meds (she’s a 6th year in med school so she knows what she’s talking about), my brother who took it upon himself to cover my eyes while my stitches were being pulled so I wouldn’t freak out, my father who was so careful while carrying me because he didn’t want to cause me further pain, the Kumars who came by to show their moral support a few days before my surgery (thank you Kiran I love you too  I know the impromptu visit was probably your idea) and my Superhero Catherine Constantinides who called before the surgery, checked on me during the surgery and continues to check on me to this day) from now onwards I will only take advice from people who I know will be there for me after I do.

Day 2738: RIP Stephen Hawking

“Life and death are one thread, the same line viewed from different sides.” – Lao Tzu

 

It’s 12 :  46 PM on day 2738 of my journey towards independence and I managed to pray, read 2 Corinthians 4:6  and promote my 50 New Feet Campaign benefiting MiracleFeet – raised  $12 559 only $6 191 more to raise by June 17, 2018 to help 75 kids with clubfoot (thanks so much to everyone who has helped out so far).

 

This morning I woke up to the news of Stephen Hawking’s passing and although I don’t share his atheism I am genuinely sad he’s gone because he was and forever will be  a symbol of what’s possible for the differently-abled (there was nobody in the differently-abled community so revered by the general public as Stephen Hawking was I thought that was cool considering most differently-abled people have to fight just to be seen). Rest in peace Stephen Hawking thank you for all you did to change perceptions about differently-abled people it’s now up to me and my generation to move the ball forward.