Category Archives: My journey towards independence

My journey from utter helplessness to independence

Day 3045: The Carpenter Who Taught Me To Stand Up For Myself

God made me like this so that I could show people that it’s okay to be different – that’s what the carpenter reminded me

It’s 1: 10 PM on day 3045 since I started blogging and I managed to pray, read a Bible verse, spend time outside and do some work

Last week Carpenter comes “May I pray for you?” I let him touch my head and pray for me (figuring what harm could it do? – always better to be kind) . Fast forward to this week same man:

Carpenter: I’ll pray for you Usha
Mom: it’s Nisha not Usha
Me: I’ll pray for you too.
God made me like this so that I could show people that it’s okay to be different.
Carpenter: Not for long God doesn’t want you to be like this – he wants you to walk and run. Just believe
Me on repeat: God made me like this so that I could show people that it’s okay to be different #DifferentIsCOOL – I’M BLESSED NOT BROKEN the whole world needs to know that. I am as God intended me to be. God loves me. 

This is not the first time someone has said such things to me nor will it be the last but this incident my soul has absorbed and my spirit has been dampened by because I realize that there are many people like the carpenter who share the view that all who are different need to be “cured” in order that they may be okay.

Day 3044: To err is human and to forgive (oneself and others) is divine

To err is human and to forgive (oneself and others) is divine    – that’s my message to the world

It’s 5: 00 PM on day 3044 since I started blogging and I managed to pray, read a Bible verse, spend time outside and do some work

Today I was reminded that everybody makes mistakes all we can do is learn from it, forgive ourselves and move on.

Day 3043: Are You The Kind of Friend You Would Want to Have?

Be the kind of friend you want to have – that’s my message to the world

It’s 1: 50 PM on day 3043 since I started blogging and I managed to pray, read a Bible verse and do some work

The first part of 2019 I’m spending in service of all my friends dreams I feel really good about myself because my success is somehow incomplete if I don’t help my friends achieve theirs – I’m really proud that I’m the kind of friend I would want to have.

Day 3041: “I Get To Love You” by Ruelle

“I get to love you.

It’s the best thing that I’ll ever do.

I get to love you.

It’s a promise I’m making to you:

Whatever may come your heart I will choose

Forever I’m yours, Forever i do.”

Ruelle, “I Get To Love You”

It’s 12: 15 PM on day 3041 since I started blogging and I managed to pray, read a Bible verse, spend time outside and do some work

Recently I heard “I Get To Love You” by Ruelle I LOVE the song I’ve listened to it on-repeat the lyrics are so beautiful even though I think the song was written about romantic love whenever I listen to it I think of my mother. Listen to “I Get To Love You” by Ruelle below

Day 3036: All of Life Is an Adventure

All of life changes when we see life itself as an adventure – that’s what i’ve realized

It’s 5: 19 PM on day 3036 since I started blogging and I managed to pray, read a Bible verse, spend time with family and do some work

Last year I was always waiting for adventure – a trip, special occasion, etc. – this year I realize life, all of life, every moment is an adventure because every moment is different and one never knows when it will come to an abrupt end.

Day 3031:Life’s Purposes and 2019 Goals

“The new year stands before us, like a chapter in a book, waiting to be written. We can help write that story by setting goals.”- Melody Beattie

It’s 9: 51 AM on day 3031 since I started blogging and I managed to pray, read a Bible verse and do some work

Today is New Year’s Day and with that comes new hopes, new opportunities and new goals. Check out my life’s purpose and 2019 Goals below:

My Life’s Purposes

  1. Fill the world with kindness and love
  2. Make a difference – level the playing field for people who were born with the cards stacked against them
  3. Change perceptions about differently-abled people

2019 Goals

  1. Continue to be kind, honest, generous, grateful and filled with wonderment
  2. Raise $28 000 for Charity:Water in honour of my 28th year of life (when we give water we give ,health, education and lost time back – I want to give one thing that changes EVERYTHING)
  3. Every day be the best SuperSidekick to Superhero Catherine Constantinides (she’s the best, most hardworking real-life Superhero I’ve ever met she totally deserves me forever  and no matter what else I’m doing in life I will always be here for her)
  4. Publish my Moments Journal(s)
  5. Make an income – doing good is wonderful and I’m proud that I’m known for that but also I need a steady income I don’t feel good about myself being financially dependent on my family at almost 28 years old
  6. Teach kids and adults worldwide that Different Is COOL
  7. Continue to raise awareness about the Western Sahara conflict – the Western Sahara has been illegally occupied by Morocco for the past 42 years due to the fact that it’s rich in natural and though the UN promised a referendum in 1991 it has yet to come to pass meanwhile half of the Saharawi People have been living in the refugee camps in Algeria for 43 years
  8. Choose people who choose me
  9. Read 12+ books
  10. Plant one tree or more
  11. Do 28+ good deeds – for my 28th year of life
  12. Say no,thank you when people ask if they can pray for me (in the context of me one day being healed)
  13. Visit London, Paris and Rome

(Note: Goals are subject to change with time and that’s ok because I will change with time)

Day 3030: 2018 In Review

Every year is a chapter in the book of one’s life – that’s my message to the world

It’s 1: 17 PM on day 3030 since I started blogging and I managed to pray, read a Bible verse and do some work

Today is New Year’s Eve and with that comes customary reflection 2018 has been a tremendous test of my physical and emotional strength I carry into 2019 the knowledge that with God and my family I can survive anything (please God may my family and friends all be with me this year and years to come and may my faith not be tested so much next year)

2018 Goals Review

  1. Continue to be kind, honest and generous[I really tried ]
  2. Choose people and organizations who choose me (if I’m someone’s second choice or if they’re actions prove that they are not that into me I will no longer give them the option to choose me I deserve better than to be anyone’s time-filler) [ I really tried to stick to this – example : I wanted to help a priest with his Soup chicken he basically said he didn’t want me to exert myself so I didn’t give it a second thought (far be it for me to chase people)
  3. Stop expecting people to be as I am [work-in-progress]
  4. Raise $5 884 more for my 50 New Feet campaign benefiting MiracleFeet by June 17th 2018 which when added to the $6 616 already raised will be enough to provide 50 children with clubfoot treatment [ended with $15 219]
  5. Call at least 2 people ( related or non-related) at least once in three months to say hi or thank you (I called as many people as I could and tried to make them feel special)
  6. Every day be the best SuperSidekick to Superhero Catherine Constantinides (she’s the best, most hardworking real-life Superhero I’ve ever met she totally deserves a SuperSidekick and I’m the only I trust to do the job properly – she totally deserves me) [MISSION ACCOMPLISHED – I give myself an A+ on this one]
  7. Publish my book Defying the odds: Where there’s a wheel, there’s a way [EPIC FAIL in that I didn’t try]
  8. Go Hot-Air Ballooning (I did some research and found out that the major hot-air ballooning operators here in South Africa won’t take me because they don’t have wheelchair-accessible hot-air balloons but darn it I’ve ziplined and paraglided I refuse to believe that there’s  nobody in this country  who can help to make this happen… mark my words I WILL BE THE FIRST South African in a wheelchair to go hot-air ballooning in South Africa I don’t know how, when or who will help me but I can tell you it will happen somehow because I am Nisha Varghese and impossible DOES NOT apply to me) [I spoke to my physiotherapist about this and she said if i go on a normal hot-air balloon, which are the only kind available in South Africa, i won’t be able to see anything because i’ll ether be seated or carried so i dont thing i want to do it anymore]
  9. Donate consumables to Breath of Life (Breath of Life is a project that takes care of orphaned and abandoned children in my city until they are adopted)
  10. Donate books to the library
  11. Make a dream come true with Reach For A Dream [I emailed them and even looked at the application form it asked if I had a drivers licence I  guessed that one need one to volunteer so I just let it go)
  12. Visit people at a retirement home
  13. Participate in the CANSA Shavathon again this year [ couldn’t go because i was post-op so made a donation ]
  14. Plant 3 trees
  15. Read 12 books [8 read – it’s not 12 but better than zero]
  16. Meet Sebastian Schütte, founder of the Panda Crew (I sked him if we could meet but it never came to be)
  17. Diarize at least one good moment of every day [did more often than not]
  18. Learn one interesting fact every day [such a fail]
  19. Tell my life-story in front of a large crowd pf people (I have major stage-fright but I know if I just spoke in front of a large crowd once it would never again be an issue… I don’t want to roll through life scared ) [I asked a certain place if I could speak to their kids they said next year even still I told my story on radio so this goal was accomplished in a different way]
  20. Go to Paris, Rome, Athens and London [not done – hopefully next year more travels]

Highlights of 2018

  1. All the good God has done through me
  2. Seeing my sister graduate from university with distinction and first-class honours
  3. My brother finishing high school
  4. Having 70+ trees planted in honour of my Superhero Catherine Constantinides’ birthday – even I was impressed it worked out I was really delighted to make my Superhero feel as special  as she is
  5. Seeing my Superhero deliver a fantastic keynote address at the Closing Ceremony of World Youth Forum in Egypt – there were 5000 PEOPLE in that room and a further 100 MILLION watching on TV and not looking nervous at all she delivered the best speech of her life I WAS FLOORED it was AMAZING….SHE WAS AMAZING!
  6. Meeting Dr. Esther Nyambura and her colleague from Smile Train – they were already in the country but still the fact they came across the country to visit me meant the world to me and it shows that gratitude is an important part of the Smile Train organization
  7. Meeting Kiran and the rest of the Kumars – they are a really kind family who have really shown up for us this year I truly appreciate them
  8. All the times I spent at Breath of Life with Michelle and the babies – every time I’m with Michelle I see what love is the way she looks at the babies and even holds them IS LOVE!
  9. All the times I spent outside in nature

Day 3029: The Greatest Showman

“The noblest art is that of making others happy.” -P.T. Barnum

It’s 11: 52 AM on day 3029 since I started blogging and I managed to pray, read a Bible verse and do some work

Recently I watched The Greatest Showman – a movie musical loosely based on the origins of the circus – aside from the fact that it was factually inaccurate I loved the cinematography and the songs of the movie – it was truly a feast for the senses.  

Day 3027: A Life of Meaning Is The Greatest of All Riches

A life of meaning is worth more than silver and gold – that’s my message to the world.

It’s 2: 36 PM on day 3027 since I started blogging and I managed to pray, read a Bible verse, go to breakfast  and do some work

Today I was reminded that the quality of our lives and our general happiness is determined by how many meaningful moments we can string together. A rich life is a meaningful life