Category Archives: My journey towards independence

My journey from utter helplessness to independence

Day 3056: A Family Tradition Fulfilled And Appreciating Everybody

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Be present in every moment for one day everyone in your life will be but a memory– that’s my message to the world

It’s 5: 37 PM on day 3056 since I started blogging and I managed to pray, read a Bible verse, spend time outside and do some work

Today in celebration of my sister’s first salary she took the whole extended family out to lunch – it’s tradition in our family to do so and most of my cousins have done it – it was such a special lunch it was so adorable seeing her pull out her credit card and type her digits what made the moment even more significant was remembering that one day  most of the people I was surrounded by would live in my memory I treasure all my time with family

Day 3054: My Mother’s Beautiful Lesson in Gratitude

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It’s important to teach gratitude in action – that’s what my parents reminded me

It’s 1: 15 PM on day 3054 since I started blogging and I managed to pray, read a Bible verse, and do some work

This Sunday my brother will be headed off to university and so yesterday we visited some of our community members who’ve had an impact on his life and as we left each house my mom would say to him tell aunty and uncle you’re leaving for university and he didthey all knew of course but my mother was reminding him to be grateful to the people that made him who he is…it was truly beautiful to witness.

Day 3052: Life Reflections on my 11th #AliveDay

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Every day is precious because no two days are the same and we never know which one will be our last – that’s what I’ve realized.

It’s 4: 10 PM on day 3052 since I started blogging and I managed to pray, read a Bible verse, spend time outside and do some work.

Today I celebrate my 11th #AliveDay –  11 months since my surgery – I’m grateful for all the days I’m blessed to be alive to add love, kindness and lightness into the world I’m also proud that since my surgery I’ve lived with more urgency while still taking the time to appreciate the little-big things. Happy #AliveDay to me I wish for myself and everyone good health, joy and a string of moments filled with meaning.

Day 3051: Powerful Yet Helpless

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We get by on the grace of others– that’s what I’ve realized.

It’s 7: 06 PM on day 3051 since I started blogging and I managed to pray, read a Bible verse, spend time outside and do some work

Today as I sat outside screaming for our temporary housekeeper to take me back inside I was reminded that in life I’m literally a sitting duck depended on the grace of others to survive every day it’s so scary being so powerful yet so helpless.

Day 3050: Human Connection

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Human beings desire and require human connection– that’s what I’ve realized.

It’s 8: 16 PM on day 3050 since I started blogging and I managed to pray, read a Bible verse, spend time with family and do some work

Today we were out and about visiting people so my brother could say his proper goodbyes before he’ll leaves for university next Sunday it was nice just being with people without thinking about what I could or should give them

Day 3049: The Lesson That Life Continues To Teach Me

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The lessons you don’t learn life will teach over and over again – that’s what I’ve realized.

It’s 4: 57 PM on day 3049 since I started blogging and I managed to pray, read a Bible verse, spend time outside and do some work

Today I was reminded that the lessons you don’t learn life will teach over and over again I do my best all the time but most of the time I feel like it’s not good enough so that’s the lesson that life continues to teach me all you can do is your best I wish I could move on to other fun life lessons but clearly I haven’t learned this one well enough to progress to other life lessons.

Day 3048: I Want Life and I Want to be Alive

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I want life and I want to be alive despite it all– that’s what I’ve realized.

It’s 12: 49 PM on day 3048 since I started blogging and I managed to pray, read a Bible verse, spend time outside and do some work

This morning as our housekeeper, Amanda, was transferring me from my bed to my wheelchair so that I could go pee and change my clothes I thought to myself will my life always be this hard and I knew the answer was yes yet I still wanted life and wanted to be alive remembering how after my surgery last year I was grateful to be alive even when I was most in pain.

Day 3047: Just Love

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To love is the best use of one’s time– that’s what I’ve realized.

It’s 1: 28 PM on day 3047 since I started blogging and I managed to pray, read a Bible verse, spend time outside and do some work

Today I was reminded that to love is the best use of one’s time whether you love a few people or many just love with every cell of your body and make sure your love is felt and known

Day 3046: Riding Out My Storms

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Sometimes all you can do is ride out the storm – that’s what I’ve realized.

It’s 11: 55 AM on day 3046 since I started blogging and I managed to pray, read a Bible verse, and do some work

This morning I was lying in bed when all of a sudden I felt extremely painful spasms at the bottom of my left foot – sometimes they happen in both feet other times just in one – they happen so infrequently and at unexpected times that I’ve never seen the point in seeking medical help for it (taking medication on an ongoing bases for something that may or may not happen on a given day, no thanks) when they happen I just lie there and silently wait for the storm to pass and nobody in the house is none the wiser (maybe someday I’ll tell them the extent of the physical pain but right now I don’t see the point in spilling my guts it would only make them feel powerless they didn’t cause my Cerebral Palsy nor can they take away the physical pain that comes with it (there’s very little I can do to help my family so I’ll spare them the horror story of the pain and discomfort I endure daily)).