Tag Archives: independence

Day 875

Times of sickness makes you appreciate times of health – that’s what I keep learning 🙂

It’s 2 : 19 PM on day 875 of my journey towards independence and I’ve managed to brush my teeth, take off my dirty t-shirt and put a clean t-shirt on, pray, feed myself All Bran Flakes with banana for breakfast, read Genesis 45, Facebook about my 10 For 22 Campaign, publish my Disability of the Day feature, practice typing with both hands, practice sitting up straight to strengthen my core muscles and stretch my hamstrings.

This morning I was minding my own business doing my own thing when suddenly I had a stomach cramp I’m fine now thankfully but going through that made me appreciate my days, weeks and months of good health. Do you appreciate your health more because you have been sick before?

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Day 874

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Enjoy your own company– that’s what I keep learning 🙂

It’s 4 : 36 PM on day 874 of my journey towards independence and I’ve managed to stretch my hamstrings, take off my t-shirt, brush my teeth, put on a new t-shirt, pray, feed myself All Bran Flakes for breakfast, read Genesis 44, publish my Disability of the Day feature, publish my Kid of the Week feature, practice typing with both hands, feed myself rice and curry for lunch, practice sitting up straight to strengthen my core muscles and listen to music.

As I type this I am singing along to random songs and acting a fool I think it’s important to learn how to have fun by yourself because everything starts with you if you don’t enjoy your own company no one else will either. Do you enjoy your own company?

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Day 873

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Do the small but important things in life while you still can – that’s what I keep learning 🙂

It’s 5 : 13 PM on day 873 of my journey towards independence and I’ve managed to stretch my hamstrings, take off my dirty t-shirt and put a clean t-shirt on, brush my teeth, feed myself butternut and chicken curry for breakfast, practice sitting up straight to strengthen my core muscles, read Genesis 43, prepare and publish my Disability of the Day feature, practice typing with both hands, listen to music, feed myself rice and curry for lunch and make sandwiches as part of Virginia’s Sandwich Run.

Today has been one of those lazy Saturdays I spent time talking to my grandma even though I no longer understand most of what she says I know that one day she won’t be around and when that day comes I don’t want to regret not spending enough time with her when she was alive. Do you take time out to do the small but important things in life?

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Day 872

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Always strive to improve– that’s what I keep learning 🙂

It’s 5 : 09 PM on day 872 of my journey towards independence and I’ve managed to stretch my hamstrings, take off my dirty t-shirt and put a clean t-shirt on, practice sitting up straight to strengthen my core muscles, brush my teeth, pray, feed myself All Bran Flakes for breakfast, read Genesis 42, publish my Disability of the Day feature, practice typing with both hands, listen to music and practice unbuttoning and buttoning a shirt – I need more practice I’m better at unbuttoning than I am at buttoning.

Today I decided to spend some time learning how to unbutton and button a shirt after seeing how much I struggled to do it yesterday I believe that you should strive to improve in everything you do every day otherwise what’s the point of living who wants to be the same every day. Do you always strive to improve?

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Day 871

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A few bad moments don’t have to make a bad day– that’s what I learned today 🙂

It’s 6 : 58 PM on day 871 of my journey towards independence and I’ve managed to take off my dirty shirt – I had trouble unbuttoning one of the buttons but I’ll keep practicing I know that one day I will be able to button and unbutton my shirts by myself 🙂 – brush my teeth, put a clean t-shirt on, stretch my hamstrings, publish my Disability of the Day feature,feed myself rice and curry for lunch and watch TV.

Today was one of those days where everything I did went wrong until I took a figurative step back and thought about all the things I have to be grateful for I think what we as people need is a mind-set shift we get so focused on all the things that are wrong with our lives that we hardly notice all the things we have to be grateful for. Do you decide you’re having a bad day as soon as a few things don’t go your way?

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Day 870

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When one chapter of your life ends another one begins– that’s what I learned today 🙂

It’s 11 : 48 PM on day 870 of my journey towards independence and I’ve managed to brush my teeth, go with my family to pick up my sister from her dorm and go visit a family friend – my parents waited to say goodbye to her one last time while we were there we decided to take her visiting with us – return my sister to her dorm with my family – I didn’t cry this time (thank the pope) we just said goodbye and left – travel back home from Cape Town only stopping to eat, go to my uncle’s house and brush my teeth once more.

Today on the drive back home from Cape Town I realized that my sister being in university was the start of a different chapter of life for both of us we did so much together and although I’m fine with being by myself now that she’s gone I feel like I have to find my own friends and do things on my own. Do you believe that when one chapter of your life ends another one begins?

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Day 869

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Tears are nothing to be ashamed of – that’s what I learned today 🙂

It’s 7 : 49 PM on day 869 of my journey towards independence and I’ve managed to sit in the car with my mom while my dad sorted out my sister’s university paperwork, eat lunch at Spur and drop my sister off at her residents (dorm).

This afternoon we dropped my sister off at her residents (dorm) I was determined not to cry but just as she was about to leave she opened the door of our passenger seat and said good bye don’t cry which of course I proceeded to do because I felt like I was being left behind in life everybody else my age was in their fourth year of university while I was still learning how to take off my t-shirt and (excuse me for being graphic) wipe my ass it just seemed unfair parents with neuro-typical kids tend to take for granted that their kids will go to university, get a job and have a family my parents have no such guarantees honestly thinking about my future scares the daylights out of me I don’t want to be a burden on my family or my country I just want to be a contributing member of society. Do you feel ashamed immediately after you cry?

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Day 867

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Life is a process of letting go –that’s what I keep learning 🙂

It’s 12 : 50 AM on day 867 of my journey towards independence and I’ve managed to pray, read Genesis 41, publish my Disability of the Day feature and publish my Kid of the Week feature.

This morning we – my mother, father and I – are travelling to Cape Town which is about one thousand kilometres away from here to drop my sister off at the University of Cape Town where she will be studying medicine for the next six years it’s going to be different not having my sister around the house but she’s her own person, I’m my own person and although we’ll still be each other’s biggest cheerleader both of us have our own lives. Have you had to let go of people you love to enable them to learn and grow?

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Day 866

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I’m allowed to cry– that’s what I keep learning 🙂

It’s 3 : 16 PM on day 866 of my journey towards independence and I’ve managed to stretch my hamstrings, take off my dirty t-shirt and put a clean t-shirt on, brush my teeth, feed myself bread and baked beans for breakfast, pray, read Genesis 40, publish my Disability of the Day feature, practice typing with both hands and go shopping and visiting with my sister.

This morning sitting in the bathroom trying so hard to dress myself I started to cry after a while having to try so hard just to get through the day gets tiring to add insult to injury you see people all around you doing something that takes you hours to do in under thirty seconds it’s infuriating. Do you give yourself permission to cry every once in a while?

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Day 865

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Learn to adapt– that’s what I learned today 🙂

It’s 2 : 20 PM on day 865 of my journey towards independence and I’ve managed to stretch my hamstrings, take off my dirty t-shirt and put a clean t-shirt on, brush my teeth, pray, practice sitting up straight to strengthen my core muscles, read Genesis 39, publish my Disability of the Day feature, practice typing with both hands and watch TV.

Today for the first time ever I tried to put on a bra by myself I got the straps over my shoulders then realized I couldn’t hook it at the back laying on my back so I asked our housekeeper for help it may take me a while but eventually I will figure out how to do it because that’s what I do I adapt to survive in a world that isn’t designed for people who are different. If you can’t do something the way everybody else does do you give up or learn to adapt?

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