Tag Archives: embryonal rhabdomyosarcoma

Day 235

Your talent allows you to show yourself as you truly are – that’s what I learned today.

It’s 8: 25 PM on day 235 of my journey towards independence and I’ve managed to brush my teeth, feed myself a bread and jam sandwich for breakfast, tweet about my Clean Water For All Campaign – no luck – watch TV, feed myself rice and curry for lunch, tweet about my campaign some more – no luck – attempt peeling an orange – I only succeeded in stabbing all the juice out of it (Note to self: Must practice cutting and peeling an orange) – feed myself an orange for dinner, play wrestling with my brother – Brennan’s death has taught me that life is too short not to get down on my brother’s level and play with him 🙂 – continue to tweet about my campaign – still no luck – and brush my teeth once more.

Today I was chatting with my friend via Facebook and she said having read this blog yesterday wow, you inspire me and in that moment I realized that the reason I loved writing so much was because people saw my soul rather than my body when they read what I wrote. When you do whatever it is you do are you able to show yourself as you truly are?

Are we connecting on Twitter? If not, say hi at http://www.twitter.com/nisha360

if you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://www.firstgiving.com/fundraiser/nisha-varghese/nishavarghese

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 228

You can love people you’ve never met – that’s what I learned today 🙂

It’s 7: 46 PM on day 228 of my journey towards independence and I’ve managed to brush my teeth, watch the royal wedding – it was a real life fairytale I have never seen anything like it 🙂 – feed myself rice and curry for lunch, go to physiotherapy – it was PAINFUL but it’s my own fault I didn’t exercise as much as I should have in the past two weeks – watch some more TV, feed myself grilled chicken for dinner and tweet about my Clean Water For All Campaign – no luck.

As you know a ten-year-old boy by the name of Brennan Daigle has found a special place in my heart and quite recently Brigaders – that’s what Brennan’s fans call themselves on Brennan’s Facebook page, Brennan’s Brigade – raised enough money to make Brennan’s dream of owning a truck come true which in itself meant so much to me but today Kay – a fellow Brigader – told me that she signed the truck on my behalf and in that moment I almost cried not because she signed the truck but because she thought of me. Take a look at the mark I made from all the way across the ocean:

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://www.firstgiving.com/nishavarghese

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 210

There’s no time like the present to make all your dreams come true – that’s what I learned today 🙂

It’s 10: 22 PM on day 210 of my journey towards independence and I’ve managed to brush my teeth, feed myself bun and jam for breakfast, tweet about my Clean Water For All Campaign for a few hours – no luck – feed myself rice and curry for lunch, watch TV, tweet about my campaign some more – no luck – feed myself bread and vegetable curry for dinner and continue to tweet about my campaign – still no luck 🙁

On March 8th of this year I read about Brennan and ever since then my life has never been the same which is why after days of posting messages of support on Brennan’s Brigade – his Facebook page – I asked to meet him via Skype – I’m still waiting for a response but hopefully Brennan and I will be chatting on Skype very soon :). Do you live your dreams every day or postpone them for a better day?

Day 177

You should dream for as long as you live – that’s what I learned today.

It’s 9: 29 PM on day 177 of my journey towards independence and I’ve managed to brush my teeth, tweet about my Clean Water For All Campaign for a few hours – two donations were made today: the first one was a $21.54 donation from @HappyOddGirl (Ruth) and the second one was a $53.85 donation from @Marie_Ang (Marie) which if my math is correct brings the total raised today to $75.39   – thanks guys 🙂 –  feed myself rice and curry for lunch, spend some time with my siblings,  feed myself  Chapati – an unleavened flatbread –  and vegetable  curry  for dinner and watch TV.

A lot of people have called me inspirational but today I met someone WAY more inspirational than me his name is Brennan and this is his story:

Wish comes true for cancer-stricken 10-year-old inducted into Army

By Zachary Roth 

 

(Photo: Capt. Gabriel Araujo swears in Brennan Daigle at Fort Polk, Louisiana. www.thefortpolkguardian.com)

Most kids might hope to get an Xbox or an iPod Touch for their 10th birthday. Brennan Daigle got a reception from a formation of soldiers, a ride in a camouflaged National Guard Humvee–and induction as an honorary member of the Army.

Since October 2009, Brennan, from Sulphur, Louisiana, has been battling embryonal rhabdomyosarcoma–a rare form of cancer in which muscular tumors attach themselves to bones, writer Rachel Reischling reports in the Fort Polk Guardian. Last month, doctors told his family there was nothing more they could do, and gave Brennan just weeks to live.

Brennan has always loved the Army.  His mother had created a Facebook page–Brennan’s Brigade–to keep family and friends informed of his condition. People from around the world, including soldiers in Iraq and Afghanistan, have left comments of encouragement and support. One group of soldiers in Afghanistan posted a picture of themselves holding an American flag, and told Brennan: “We’re flying this flag in honor of you; we’re here to back you. Stay Army strong.”

Becky Prejean, who runs a charity for sick kids called Dreams Come True of Louisiana, heard about Brennan’s illness, and got in touch with his mother, Kristy Daigle. Brennan’s greatest wish, Daigle told Prejean, was to meet some soldiers in person, before his illness worsened. So the two women contacted the Fort Polk Community Relations Office, which put out a call for a few soldiers to attend Brennan’s tenth birthday on Feb. 26.

Forty showed up.

Brennan had been told he was going fishing with his father. But when he got out of his dad’s truck, he was greeted by a formation of 1st MEB soldiers, standing at attention in front of a National Guard Humvee. After a moment, they all shouted “Happy Birthday, Brennan!,” and broke into applause.

Brennan was speechless, according to his mother. “All he could do was giggle,” she said.

Brennan and his best friend Kaleb were invited to check out the Humvee, and Brennan sat behind the wheel. Then soldiers took the two boys out for a spin. Afterward, Brennan and Kaleb put their heads out the hatch on the vehicle’s roof, while the crowd snapped pictures.

But it wasn’t over. Brennan got out of the Humvee and was led to the front of the formation, where he shook hands with each soldier. He was inducted into the Army as an honorary member, then given a coin symbolizing merit and excellence, as well as a military jacket with his name on the pocket, and other Army-themed gifts.

“Brennan, you exemplify what personal courage means,” Pfc. Kamesha Starkey, 1st MEB, told him.

Finally, the mayor of Sulphur, La., gave Brennan a key to the city, and the title of Honorary Mayor of the Day.

“Words can never express what I felt seeing all those soldiers there, knowing some of them had just come back from Iraq and still took time out for just one little boy,” Kristy Daigle said. “Just to know that they care enough to give their all, to give their love and support to a little boy is phenomenal. It says so much about our men and women who serve our country in the armed forces.”

Some of the soldiers said the event helped put things in perspective for them. “It was good to be able to give back,” Pfc. Kyle Frederick said. “It opened my eyes to a lot of things: How I take my kids for granted, how lucky we are, how we complain on a day-to-day basis and we really have it good compared to others.”

As for Brennan, it took a while for his new honor to sink in. The next day, he asked his mother, “Am I really in the Army?”

“You most certainly are,” she answered. “They don’t swear in just anyone.”

“That’s awesome,” said Brennan.