Day 2614: Why I Don’t Need Respite From My Beautiful Life

The road to hell is paved with good intentions and very little engagement with stakeholders – that’s what I have realized.


It’s 1 : 18  PM on day 2614 of my journey towards independence and I managed to pray,  read Titus 2:11, and promote my 50 New Feet Campaign benefiting MiracleFeet – A HUGE thanks to  Stan Faryna, author of Francesco Augustine Bernadone   who donated $50 and Debbie Gleason donated $18 yesterday  which brings the total raised to  $4 556 only $7 944 more to raise by June 17, 2018 to help 50 kids with clubfoot.


This morning I came across a well-meaning organization distributing wheelchairs worldwide (which is awesome truly it is) and offering “Family Retreats to provide respite for those with disabilities and their families” having a disability is not something a weekend away can fix it’s my life I don’t need a break from it i just need support as I try to live my life to its fullest potential (sometimes I think these NPOs organizations working in the disability sector don’t even bother to engage with the people they are trying to help because if they did they would understand that people with disabilities need access to education and skills training not “respite” because while a family retreat may be fun people need education and skills to make a meaningful contribution to the world).

2 thoughts on “Day 2614: Why I Don’t Need Respite From My Beautiful Life

  1. Adelaide Dupont

    So true.

    And a lot of disability insurance schemes are cutting off respite or having very minimal stuff without that investment in education and training which is a mainstream service.

    Respite is good if it brings you together. They could have a change agent workshop or something else. They need to think – “Respite to do what? Respite from what?”

    And of course if you do have a new wheelchair you might need motivation to go somewhere or do something. Respite and retreats can do that.

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